Reviewer: JP1, 45-54 on Treatment for 1 to 6 months (Patient)

Comment:
I have been taking Riluzole for nearly three months now. I began taking it after the fasciculations in my left arm (which began September 2015) caused my hand to become weaker. Not sure it is working but at this point my left arm has become nearly crippled. Today my right arm is almost normal but with a slight weakness in my right hand. It's my driving arm, with the help of a steering knob! I ... Show Full Comment

Comment:
I have been taking Riluzole for nearly three months now. I began taking it after the fasciculations in my left arm (which began September 2015) caused my hand to become weaker. Not sure it is working but at this point my left arm has become nearly crippled. Today my right arm is almost normal but with a slight weakness in my right hand. It's my driving arm, with the help of a steering knob! Is it the drug that's holding the progression at bay? How can I tell?? Lately i've been having trouble sleeping but could be the pain in my left shoulder... my appetite is nearly nonexistent though I continue eating at my normal times. Doc says alcohol is fine and the last two liver tests came out ok so wine, beer, etc. are still on the menu! Oh, I've also forgotten to take it a total of eight times now!
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Reviewer: Zardoz, 55-64 on Treatment for 2 to less than 5 years (Patient)

Comment:
Because every ALS progression is different I don't know if this medication is effective. After 3 years and now totally paralyzed and unable to breath, eat or drink I am stopping the drug.

Comment:
Because every ALS progression is different I don't know if this medication is effective. After 3 years and now totally paralyzed and unable to breath, eat or drink I am stopping the drug.
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Reviewer: Ridge rock, 65-74 on Treatment for 1 to less than 2 years (Patient)

Comment:
Extremely difficult to take for ALS patients. No coating so pill dissolves in mouth with any level of swallowing difficulty - which all ALS patients have.

Comment:
Extremely difficult to take for ALS patients. No coating so pill dissolves in mouth with any level of swallowing difficulty - which all ALS patients have.
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Reviewer: rob, 65-74 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
am more tired and eat less. condition has worsened but still feel medication worth taking. also expensive as insurance doesn't cover it.

Comment:
am more tired and eat less. condition has worsened but still feel medication worth taking. also expensive as insurance doesn't cover it.
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Reviewer: James, 55-64 Male on Treatment for 1 to 6 months (Patient)

Comment:
Sleepy always and increased muscle weekness

Comment:
Sleepy always and increased muscle weekness
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