Reviewer: jjneri, 55-64 on Treatment for 1 to 6 months (Patient)

Comment:
Diagnosed with ALS in January, started Riluzole - I felt worse, weaker, worried abut my liver, etc. My second opinion said this drug may extend my life by 3-4 months! Really! Why a I taking this and feeling worse. I stopped taking it and started taking Protandim (look it up) - I feel great and m back playing the drums with the help of some special gloves since my right hand is weak! Not worth the ... Show Full Comment

Comment:
Diagnosed with ALS in January, started Riluzole - I felt worse, weaker, worried abut my liver, etc. My second opinion said this drug may extend my life by 3-4 months! Really! Why a I taking this and feeling worse. I stopped taking it and started taking Protandim (look it up) - I feel great and m back playing the drums with the help of some special gloves since my right hand is weak! Not worth the worry, weakness. My wife has told me I went from being grey and looking like death - to handsome and she says she has her husband back. Protandim in not a cure! It does help with your overhealth
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Reviewer: porchcat, 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
I am very tired, constantly. Been taking it for 3 wks. but tiredness is very noticeable. I was taking walks, going to work, etc. - even driving. Doing less since the drug - walks are short 1-2 blocks, and then I have to rest. Not sure that I want to continue.

Comment:
I am very tired, constantly. Been taking it for 3 wks. but tiredness is very noticeable. I was taking walks, going to work, etc. - even driving. Doing less since the drug - walks are short 1-2 blocks, and then I have to rest. Not sure that I want to continue.
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Reviewer: woundedwarrior1207, 65-74 Male on Treatment for 1 to 6 months (Patient)

Comment:
Seems to me that I have become significantly weaker during the month and a half I have been taking this drug (riluzole). Unable to determine if this weakness caused by disease or the drug. Others who have commented have similar question. Perhaps my doc will have an explanation during my next visit.

Comment:
Seems to me that I have become significantly weaker during the month and a half I have been taking this drug (riluzole). Unable to determine if this weakness caused by disease or the drug. Others who have commented have similar question. Perhaps my doc will have an explanation during my next visit.
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Reviewer: Lucille, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I can't determine how much it has helped me because I don't know how I would feel if I have never taken the drug. Overall all I had no side effects that were obvious. The only thing is how long should I take the drug? Does anybody know? I know it could affect my Liver - I have taken the drug for 7 months so far.

Comment:
I can't determine how much it has helped me because I don't know how I would feel if I have never taken the drug. Overall all I had no side effects that were obvious. The only thing is how long should I take the drug? Does anybody know? I know it could affect my Liver - I have taken the drug for 7 months so far.
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Reviewer: nurse with A:LS, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I debated whether or not to take this drug. Will it give me 6 more months of disability for my family to deal with? or will it keep me independent for 6 more months? I started to take it and find it makes me weaker, which I do not need with this disease. It does make your mouth numb if it sits there. I have very little appetite, I'm thinking of going off it and let the disease run its cour ... Show Full Comment

Comment:
I debated whether or not to take this drug. Will it give me 6 more months of disability for my family to deal with? or will it keep me independent for 6 more months? I started to take it and find it makes me weaker, which I do not need with this disease. It does make your mouth numb if it sits there. I have very little appetite, I'm thinking of going off it and let the disease run its course with me.
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