Reviewer: KP, 13-18 Male on Treatment for 1 to 6 months (Patient)

Comment:
Hi! I am a 16-YO boy. I have serious orthostatic hypotension and blood pressure is always low and so is my heart. This drug at least now helps me walk over 50m without taking rest. I wasen't even able to do that before. I have what is called autonomic dysfunction due to which I have this problem.

Comment:
Hi! I am a 16-YO boy. I have serious orthostatic hypotension and blood pressure is always low and so is my heart. This drug at least now helps me walk over 50m without taking rest. I wasen't even able to do that before. I have what is called autonomic dysfunction due to which I have this problem.
Hide Full Comment

Reviewer: OrthoHypoGal, 35-44 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I was diagnosed with Orthostatic Hypotension just over 15 years ago when I was 26 years old. Before treatment my blood pressure would rapidly drop if upright, all the way down to 35/0 (yes I turned fun shades of blue and grey, stayed conscious but very easily confused and very painful, had memory trouble for the 6 months before they found the problem and started treatment along with the first year ... Show Full Comment

Comment:
I was diagnosed with Orthostatic Hypotension just over 15 years ago when I was 26 years old. Before treatment my blood pressure would rapidly drop if upright, all the way down to 35/0 (yes I turned fun shades of blue and grey, stayed conscious but very easily confused and very painful, had memory trouble for the 6 months before they found the problem and started treatment along with the first year on medication). I was on Acebutolol for about 10 years but still was bedridden for a good portion of each year. Then we tried Midodrine 10mg 3 times a day and the side effects were TERRIBLE but my body functioned most of the time and I no longer had to rest up for a week to be able to commit to an hour long cub scout meeting, etc... so I stuck with it! After about a year on the medication I no longer got chills & goosebumps with every dose and was my body was learning how not to trigger bp spikes. But the rush & strange sensations that I got along with the tingling/itches/goosebumps within 1hr of each pill were still there to some degree. & it still began to wear off 1hr before the next dose was due (4hrs between pills) and overtime this rollercoaster of nervous energy at the start, function in the middle, & crashing out near the end of every pill led to me walking around like I was a normal healthy person for the most part but not acting or feeling like myself & driving my family batty (when you finally seem healthy they expect you to behave like you always have and can be downright cruel when you aren't). It was as if I had my son's severe ADHD at different hours on the medication. We switched to 5mg pills every 2 hours, 6/day with the ability to take 1 more on occasion for a longer day. It helped a little but then all the symptoms just felt worse and less predictable. After about 6 months of it (after around 4.5 years on it before we changed the dose) I went to the doctor in tears & begged to go back on the less effective Midodrine. He said yes!
Hide Full Comment

Reviewer: hena, 75 or over Female on Treatment for 1 to 6 months (Patient)

Comment:
I have had involuntary facial movements that tire me and I look ridiculous with my lips suddenly going into weird movements and my eye closing. As the drug wears off, the side effects go away. This constant movement is exhausting and makes me look ridiculous. I also bite the inside of my mouth.

Comment:
I have had involuntary facial movements that tire me and I look ridiculous with my lips suddenly going into weird movements and my eye closing. As the drug wears off, the side effects go away. This constant movement is exhausting and makes me look ridiculous. I also bite the inside of my mouth.
Hide Full Comment

Reviewer: 55-64 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I have hypotension. Low blood pressure. many hospital stays until i was diagnosed with Amyloidosis Protein spill damaged my heart so midadrine is a life saver

Comment:
I have hypotension. Low blood pressure. many hospital stays until i was diagnosed with Amyloidosis Protein spill damaged my heart so midadrine is a life saver
Hide Full Comment

Reviewer: Ray, 75 or over Male on Treatment for 1 to 6 months (Patient)

Comment:
I take Methadone for chronic pain, which after time drove my blood pressure low, especially on standing up. It got so bad I could hardly walk around my hone, It was finally determined that my blood pressure was going low because of the Methadone. I take two 2.5 pills at 8 a.m. and 12 noon and one at 4 p.m. This medication has given my live back to me. Could not do without it.

Comment:
I take Methadone for chronic pain, which after time drove my blood pressure low, especially on standing up. It got so bad I could hardly walk around my hone, It was finally determined that my blood pressure was going low because of the Methadone. I take two 2.5 pills at 8 a.m. and 12 noon and one at 4 p.m. This medication has given my live back to me. Could not do without it.
Hide Full Comment