Read user comments about the side effects, benefits, and effectiveness of Elmiron oral.
Overall User Ratings
183 Total User Reviews
User Reviews
Learn about
User Reviews
Reviewer: Barbara, 75 or over on Treatment for 10 years or more (Patient)
Effectiveness
Ease of Use
Satisfaction
Comment:
I have IC, for over 25 years. After finally getting diagnosed by having a cystoscopy, I had DMSO treatments(burned terribly and did not help), then had heparin treatments(which felt good only while having txs), then started Elmiron 3X/day and 2 hydroxyPAM(has to be the PAM ) at bedtime. After 2 weeks, it was like I did not even have the disease, pain, pressure, and urgency were gone. I cannot fun
...
Show Full Comment
1
person
found this review helpful.
Was this review helpful? Yes | No
Reviewer: Barb8xbfoe, 65-74 on Treatment for 10 years or more (Patient)
Effectiveness
Ease of Use
Satisfaction
Comment:
I have use this drug for 15 years. I still will have flares and get further treatment. I follow the diet. I am worried now, I have developed MACULAR DEGENERATION. I feel this is from the ELMIRON! What to do now?
6
people
found this review helpful.
Was this review helpful? Yes | No
Reviewer: Jaelithe, 35-44 Female on Treatment for 1 to 6 months (Patient)
Effectiveness
Ease of Use
Satisfaction
Comment:
I have not had any relief and I’m losing my hair. I’m trying to stick it out since it’s only been a month but I wish the FDA would invest more time and money into the study of Interstitial Cystitis. There are too many people suffering for something that is incurable. I cannot Work, I can barely ride in a car. It’s affecting my life and I feel like nothing is being done to help.
20
people
found this review helpful.
Was this review helpful? Yes | No
Reviewer: mad in NJ, 75 or over on Treatment for 10 years or more (Patient)
Effectiveness
Ease of Use
Satisfaction
Comment:
I was prescribed to take 4 tablet a day, its so expensive I can get along w/one a day, BUT my so called doc will only write a script for 3 a day, said that is what is recommended. I need a script for 360 and that will last me almost a year, but no he refuses. These people who RECOMMED ON:|LY 3 a day has NEVER had the pain I have had. Sick of whimp doctors, and he is urologist to boot. Shame on the
...
Show Full Comment
10
people
found this review helpful.
Was this review helpful? Yes | No
Reviewer: peggy, 75 or over Female on Treatment for 1 to less than 2 years
Effectiveness
Ease of Use
Satisfaction
Comment:
had this problem for 6 year ,, Gave no relief of bladder symptoms and caused severe stomach upset, smelly urine, still on it,
11
people
found this review helpful.
Was this review helpful? Yes | No
Ask the pharmacist
Questions about medications? Get expert answers by video or live chat about allergies, pregnancy, sleep, and more.
See the Ask the Pharmacist event schedule.
WebMD the app
Get trusted health information. Whenever. Wherever... with your iPhone, iPad or Android.
Find Out MoreIMPORTANT: About This Section and Other User-Generated Content on WebMD
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.