Reviewer: Guest, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I was diagnosed about 2 years ago, I am in full molecular remission. However I am 29, I suffer from chronic fatigue and I am now dealing with the fact that I want to get pregnant and there is no research, its very hard, There are no studies of what the outcome may be, I have to come off of it while pregnant, there are no studies as to how quickly my WBC will rise. Its frustrating. I can no longer ... Show Full Comment

Comment:
I was diagnosed about 2 years ago, I am in full molecular remission. However I am 29, I suffer from chronic fatigue and I am now dealing with the fact that I want to get pregnant and there is no research, its very hard, There are no studies of what the outcome may be, I have to come off of it while pregnant, there are no studies as to how quickly my WBC will rise. Its frustrating. I can no longer go in the sun for periods of time ( I used to be a big tanner, I live in Florida ;) ) As well as I cannot tolerate heat and another weird side effect is that it has turned my eye lashes and eyebrows blonde. I'm a brunette. But other than that I AM IN REMMISION :)
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Reviewer: Susan, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Been on Sprycel 100mgs (1 tab) a day since August 2012. Diagnosed July 2012. Feeling pretty lucky. No pain and my blast cell count greatly reduced. Waiting on big 12 month results. Only differences are the not too frequent tired days and I can't carry heavy bags or groceries now as my arms will ache (drives me nuts!) :)

Comment:
Been on Sprycel 100mgs (1 tab) a day since August 2012. Diagnosed July 2012. Feeling pretty lucky. No pain and my blast cell count greatly reduced. Waiting on big 12 month results. Only differences are the not too frequent tired days and I can't carry heavy bags or groceries now as my arms will ache (drives me nuts!) :)
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Reviewer: Sansa, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
Started on Gleevec, caused severe bone pain, stopped working, switched to Sprycel, can only tolerate lowest dose, 50mg, still have severe bone pain as well as quite a few other side effects. In remission for the last year or so. On disability, not able to function well due to pain and pain meds.

Comment:
Started on Gleevec, caused severe bone pain, stopped working, switched to Sprycel, can only tolerate lowest dose, 50mg, still have severe bone pain as well as quite a few other side effects. In remission for the last year or so. On disability, not able to function well due to pain and pain meds.
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Reviewer: Rob, 55-64 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
Compared to Tasigna, (Nilotonib), which has a 3 hour food window twice a day, this has been so much easier, and I am able to maintain my weight. Since I have been on Sprycel, my CML has gone from 27% of my blood, to 1/10th of one percent. I am currently in both molecular, and cyber genetic remission. I should remain this way, as long as I take Sprycel everyday, for the rest of my life.

Comment:
Compared to Tasigna, (Nilotonib), which has a 3 hour food window twice a day, this has been so much easier, and I am able to maintain my weight. Since I have been on Sprycel, my CML has gone from 27% of my blood, to 1/10th of one percent. I am currently in both molecular, and cyber genetic remission. I should remain this way, as long as I take Sprycel everyday, for the rest of my life.
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Reviewer: Khaloud , 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
At first like any medication you need to give your body time to adjust. For those that complain of yest infections wash you self with water every time you use the bathroom and dry with toilet paper. Don't just wipe with toilet paper. I went to MD Anderson for a second opinion. I needed to know if i was taking all i need to take and if I could push my self or just lay back and stay tired. Aft ... Show Full Comment

Comment:
At first like any medication you need to give your body time to adjust. For those that complain of yest infections wash you self with water every time you use the bathroom and dry with toilet paper. Don't just wipe with toilet paper. I went to MD Anderson for a second opinion. I needed to know if i was taking all i need to take and if I could push my self or just lay back and stay tired. After being told that I vould push my self I went back to the gym and started off as someone that just started working out. It takes time to get your body back to a normal routine. I did what I could and worked my way up. After a couple of weeks I was back to normal. Now I'm able to take two classes back to back and feel great. I do step, Total body wheight lifting, yoga, treadmill, eleptical, my oncologist homogoligest doctor put me on a dieratic for my water retention. You have to see a hemotioligest no just oncoligest. If you could find on that is both even better I am not letting this control my life. I am trying to take control of it. I have my bad days, but very few. I was diagnosed in mid January of 2012. My white count was back to normal within 3 months after taking the Sprycil . I have been in remition for 2 months now. I'm scheduled for another bone narrow on the 16th of this month in MD Anderson. No one should ever give up. You can turn your self around. After all it could be worse. I am very thankful to god that Sprycil is available for our condition. I sometime forget that I have CML.
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