Reviewer: Kym, 19-24 on Treatment for 6 months to less than 1 year (Patient)

Comment:
Firstly, Dostinex is a dopamine agonist, not an antagonist as the article says. Dopamine helps inhibit prolactin, which is why itâ??s agonist effects are helpful in the treatment of prolactinomas. When starting on the Dostinex, I experienced postural hypotension (a change in my blood pressure when standing), which made me feel faint and dizzy. However, the medication has lowered my prolactin ... Show Full Comment

Comment:
Firstly, Dostinex is a dopamine agonist, not an antagonist as the article says. Dopamine helps inhibit prolactin, which is why itâ??s agonist effects are helpful in the treatment of prolactinomas. When starting on the Dostinex, I experienced postural hypotension (a change in my blood pressure when standing), which made me feel faint and dizzy. However, the medication has lowered my prolactin levels back to normal, saving me from having to undergo transsphenoidal surgery for tumour removal. I am thankful that there is a medication out there which can do this.
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Reviewer: Mary, 35-44 on Treatment for 1 to 6 months (Patient)

Comment:
My prolactin has been around 30 (because of stress). I took half pill per week for two months. My prolactin fell to 20, but I suffered depression. I had panic attacks and a constant feeling of fear, anger and sadness. It has been awful. Fortunately when I stop taking the pill, these feelings started to fade until they were gone. Now the doctor said i should try it again but I am terrified.

Comment:
My prolactin has been around 30 (because of stress). I took half pill per week for two months. My prolactin fell to 20, but I suffered depression. I had panic attacks and a constant feeling of fear, anger and sadness. It has been awful. Fortunately when I stop taking the pill, these feelings started to fade until they were gone. Now the doctor said i should try it again but I am terrified.
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Reviewer: Ronnie, 45-54 Male on Treatment for less than 1 month (Patient)

Comment:
I finally have a more full & better erection,oh and my sex appetite is back too. I would highly recomend this product. No side effects at all for me.

Comment:
I finally have a more full & better erection,oh and my sex appetite is back too. I would highly recomend this product. No side effects at all for me.
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Reviewer: Jeff, 25-34 Male on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed with a 7cm prolactinoma just this March. It was discovered when I saw the opthamologist and was basically legally blind. Had a surgical resection of the tumor endoscopically via the nasal passages and my doctor was able to remove 80% of it. He's awesome and he saved my life! I have been on Dostinex (Cabergoline) for nearly two months now (0.5mg) twice a week and it appears to b ... Show Full Comment

Comment:
I was diagnosed with a 7cm prolactinoma just this March. It was discovered when I saw the opthamologist and was basically legally blind. Had a surgical resection of the tumor endoscopically via the nasal passages and my doctor was able to remove 80% of it. He's awesome and he saved my life! I have been on Dostinex (Cabergoline) for nearly two months now (0.5mg) twice a week and it appears to be working like a dream. My prolactin level was at about 2000 before surgery and it is now down to 23 as of my last blood test. Hoping this means the tumor is shrinking. I'll be having an MRI again at the end of June but my doctor seems to be really happy with the results of Dostinex. It's a great drug for treating these types of tumors. I do sometimes feel tired but I'd rather be a little tired once in a while and know that my prolactin level is approaching normal if not already there. As a 31 year old male, it was a bizarre feeling to learn I had a prolactin producing adenoma, but I'm glad this drug appears to be working. It is expensive, close to $300 for 8 pills but it's worth it.
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Reviewer: FedupandHungry, Female on Treatment for less than 1 month (Patient)

Comment:
I haven't been on the drug long enough to know if it is dealing with my prolactinoma. I am often queasy until about 2 pm and was slightly dizzy for the first couple of weeks. Have had some heart palpitations but had those before the Dostinex. Also experiencing a lot of fatigue but am on iron injections for anemia, so may not be dostinex related. Before I went on the Dostinex, I managed to ... Show Full Comment

Comment:
I haven't been on the drug long enough to know if it is dealing with my prolactinoma. I am often queasy until about 2 pm and was slightly dizzy for the first couple of weeks. Have had some heart palpitations but had those before the Dostinex. Also experiencing a lot of fatigue but am on iron injections for anemia, so may not be dostinex related. Before I went on the Dostinex, I managed to bring my prolactin levels down from 795 to 424 (within normal) by eliminating wheat from my diet. Something to consider trying. Still eating rye, oats, barley and other glutinous grains. I live overseas and 8 pills cost about USD 40 here.
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