Reviewer: 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
I don't recommend taking this unless you have your white blood cells monitored pre and during taking this. I happened to hear that this medication causes drops in white blood cell levels so, I went to the doc and sure enough, my level was 2.9 vis 4.0-11.0. I was told to go off it immediately (Have to get off slowly) AND RETEST LEVELS ONE WEEK LATER. I know you have to monitor risk benefit. F ... Show Full Comment

Comment:
I don't recommend taking this unless you have your white blood cells monitored pre and during taking this. I happened to hear that this medication causes drops in white blood cell levels so, I went to the doc and sure enough, my level was 2.9 vis 4.0-11.0. I was told to go off it immediately (Have to get off slowly) AND RETEST LEVELS ONE WEEK LATER. I know you have to monitor risk benefit. For me, I get face pain episodes approx 2 times per requiring me to take 3-6 imitrex during that time. So, I would rather not take this drug. I have heard Lyrica is supposed to be good but I am choosing to stop all. The risks of side effects long term is just not worth it to me.
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Reviewer: reno94c_, 65-74 Female on Treatment for 10 years or more (Caregiver)

Comment:
Husband's been on Carbamazepine for about 15 years along with gabapentin in high doses. 2 weeks ago had bad spell, still in hospital. Half the time he doesn't know where he is, can barely stand and balance himself. This doctor at hospital said his brain and body became toxic from the carbamazepine. I'm hoping and praying he gets back to normal.

Comment:
Husband's been on Carbamazepine for about 15 years along with gabapentin in high doses. 2 weeks ago had bad spell, still in hospital. Half the time he doesn't know where he is, can barely stand and balance himself. This doctor at hospital said his brain and body became toxic from the carbamazepine. I'm hoping and praying he gets back to normal.
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Reviewer: IHateDrugs, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Since I started this my TN pain is gone, but I CAN'T BREATHE. My chest is tight all the time. My heart pounds. I had a bad rash for the first couple months which has slowly cleared but the sun brings it back. I have lupus which my idiot doctor knows. Apparently he doesn't know you aren't supposed to take this stuff if you have lupus. I can't wait to get off it.

Comment:
Since I started this my TN pain is gone, but I CAN'T BREATHE. My chest is tight all the time. My heart pounds. I had a bad rash for the first couple months which has slowly cleared but the sun brings it back. I have lupus which my idiot doctor knows. Apparently he doesn't know you aren't supposed to take this stuff if you have lupus. I can't wait to get off it.
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Reviewer: Merryannb, 65-74 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
eliminates pain for long periods of time. Occasionally need to increase the dose when having pain after unusual stimulation as after dental work. I have been able to decrease the dose after a few days on the higher dose.

Comment:
eliminates pain for long periods of time. Occasionally need to increase the dose when having pain after unusual stimulation as after dental work. I have been able to decrease the dose after a few days on the higher dose.
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Reviewer: 65-74 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
i have trigemenial neuralgia across my forehead and down the side of my face. it took a while for the initial side affects to pass. since then the relief has been wonderful. my only regret is this seems to be a medication i will need to take for life.

Comment:
i have trigemenial neuralgia across my forehead and down the side of my face. it took a while for the initial side affects to pass. since then the relief has been wonderful. my only regret is this seems to be a medication i will need to take for life.
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