Reviewer: Lara, 65-74 on Treatment for 2 to less than 5 years (Patient)

Comment:
My Trigeminal Neuralgia started in 1996 as the result of a severe undiscovered infection caused by a corroded silver pin used during a root canal when I was 11 years old.(I am a language teacher and singer, and went through some excruciating days, using ice packs, heat, etc.) Doctors just kept wanting to give me pain killers and all the dentists I went to, kept telling me they could see nothing w ... Show Full Comment

Comment:
My Trigeminal Neuralgia started in 1996 as the result of a severe undiscovered infection caused by a corroded silver pin used during a root canal when I was 11 years old.(I am a language teacher and singer, and went through some excruciating days, using ice packs, heat, etc.) Doctors just kept wanting to give me pain killers and all the dentists I went to, kept telling me they could see nothing wrong. Meanwhile, the abscess was eating through my jaw bone. After it was finally big enough to be discovered, about 10 - 12 months,(and x-rays got more precise) and the abscess was taken care of, it went away for 20 years. I then moved and found a new dentist who did NOT LISTEN to me! He made a night guard for the wrong area of my mouth and the TGN started again. Had two very severe attacks in 2017 and I have been using Carbamazepine as needed when I feel twinges. I have been very lucky. I want to let you know about an organic essential that was introduced to me in a health/natural store. You roll it on the outside of the area causing the pain and I have found it to be extremely helpful. It is VERIDITAS by Pranarom and is called: Just Plain Relief. Yes, that's Plain (with an "l"). I take two 200 mg grams of Carba... twice a day and if I do get a spasm, I roll this on. I find it very soothing and considerably helpful. I certainly hope you find the right combination that will work for you.
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Reviewer: Troy, 45-54 on Treatment for less than 1 month (Patient)

Comment:
Was experiencing 120 volt-like pain stabs for a while which transferred to 2-5 minute attacks. It was like my own body was electrocuting itself. Carbemazepine at 200mg a day did nothing. It took 400 mg a day to finally get it under control. I am going to a Dentist today in hopes of extracting a tooth that may be pressing on the nerve. I am not looking forward to the surgery options. All in all, ... Show Full Comment

Comment:
Was experiencing 120 volt-like pain stabs for a while which transferred to 2-5 minute attacks. It was like my own body was electrocuting itself. Carbemazepine at 200mg a day did nothing. It took 400 mg a day to finally get it under control. I am going to a Dentist today in hopes of extracting a tooth that may be pressing on the nerve. I am not looking forward to the surgery options. All in all, the Carbemazepine did save my sanity for the time I have been on it. I could actually function as a normal human being this last week. God Bless (or whatever higher being you believe in) if this is happening to you. I would not wish this on my worst enemy. The medication did work wonders though, but, it is not a final solution.
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Reviewer: Bet6252, 55-64 on Treatment for 5 to less than 10 years (Patient)

Comment:
I took this medication 1000 mg for 8 yrs. when I was first diagnosed I had the Macular decompress operation. Didnâ??t work. 8 yrs later had the Gamma Knife because i was having a lot of pain even with the meds. So I took the chance and it worked. I have been pain free for 1 yr and 2 months. The medicine did work gor me. And the highest dosage I took was 1000 msg per day. But like all medicine ... Show Full Comment

Comment:
I took this medication 1000 mg for 8 yrs. when I was first diagnosed I had the Macular decompress operation. Didnâ??t work. 8 yrs later had the Gamma Knife because i was having a lot of pain even with the meds. So I took the chance and it worked. I have been pain free for 1 yr and 2 months. The medicine did work gor me. And the highest dosage I took was 1000 msg per day. But like all medicines there are side affects. I was feeling depression and at times suicidial but I never attempted to do anything so drastic. Because the pain of TN has been know to cause that. I never gave up and I hope this helps someone and gives them hope. I will try gamma knife again if the pain comes back. But the meds did work.
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Reviewer: mnicholson123, 25-34 on Treatment for 1 to 6 months (Patient)

Comment:
I am 28yrs old and have had constant face pain for four years. Just recently acquired insurance, and went to the local urgent Care. Doc there tells me go see a neurologist. Neurologist says you have trigeminal neuralgia and gives me 600mg of gabapentin 3 times a day, and 200mg of carbamazepine 3 times a day. The pain gets dulled away, but some days I can feel it leak through the medication and rui ... Show Full Comment

Comment:
I am 28yrs old and have had constant face pain for four years. Just recently acquired insurance, and went to the local urgent Care. Doc there tells me go see a neurologist. Neurologist says you have trigeminal neuralgia and gives me 600mg of gabapentin 3 times a day, and 200mg of carbamazepine 3 times a day. The pain gets dulled away, but some days I can feel it leak through the medication and ruin my life. My wife hates those days. I went to an ENT and he says get your septum fixed and it'll help. I get the surgery. The pain is still there. Can anyone out there with trigeminal neuralgia tell me if they have a constant pain all the time like I do? I've had an MRI and a CT scan and they say nothing is wrong, so it must be that nerve. But everyone else seems like their pain comes and goes. Mine is always there.
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Reviewer: Marciedale, 45-54 on Treatment for 1 to 6 months (Patient)

Comment:
I have been suffering from Trigeminal Neuralgia for the past 2 months and started on 100mg 2x per day. It practically took away the pain and have recently had to increase to 200mg 2x a day, we will see how that goes. Side effects are minimal compared to the pain from the TN episodes. Hoping to control this with just medication and no surgeries.

Comment:
I have been suffering from Trigeminal Neuralgia for the past 2 months and started on 100mg 2x per day. It practically took away the pain and have recently had to increase to 200mg 2x a day, we will see how that goes. Side effects are minimal compared to the pain from the TN episodes. Hoping to control this with just medication and no surgeries.
Hide Full Comment