Reviewer: KJ, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I have had CML for five years. Was on Gleevec first six months and could not tolerate the nausea. Oncologist started me on Tasigna. The twice a day regimen requires planning, for me taking the first dose when I wake up helps. I started with 400 twice a day and had extreme fatigue, weakness, depression, anemia, and insomnia. I'm also hot all of the time and have developed psoriasis. I have been ... Show Full Comment

Comment:
I have had CML for five years. Was on Gleevec first six months and could not tolerate the nausea. Oncologist started me on Tasigna. The twice a day regimen requires planning, for me taking the first dose when I wake up helps. I started with 400 twice a day and had extreme fatigue, weakness, depression, anemia, and insomnia. I'm also hot all of the time and have developed psoriasis. I have been able to reduce my dosage over the past 3.5 years and the side effects have improved. Make sure you have an oncologist that you trust and who listens. Switching to a blood cancer specialist really helped.
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Reviewer: NEW YORKER, 55-64 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
First side effect:, my nipples started itching,then they got very stiff and started hurting if I touch them.Six weeks later I started feeling tired and my erection started to get weak.I visited a uroligist and had my testosterone level checked -it was low.I have started hormone treatment but once every two weeks but the level keep dropping.At this point I am on an increased dosage once a week.

Comment:
First side effect:, my nipples started itching,then they got very stiff and started hurting if I touch them.Six weeks later I started feeling tired and my erection started to get weak.I visited a uroligist and had my testosterone level checked -it was low.I have started hormone treatment but once every two weeks but the level keep dropping.At this point I am on an increased dosage once a week.
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Reviewer: 65-74 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I've been taking this drug for over 5 yrs., after gleevec didn't work & with my very good Drs. adustments, I thank God I'm still living with CML after 32 years.

Comment:
I've been taking this drug for over 5 yrs., after gleevec didn't work & with my very good Drs. adustments, I thank God I'm still living with CML after 32 years.
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Reviewer: 75 or over Female on Treatment for 1 to 6 months (Patient)

Comment:
I find the eating regimen difficult.

Comment:
I find the eating regimen difficult.
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Reviewer: annie, Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I am in remission, because of the tasigna,but i need to keep taking tasigna. I'm experimenting side effects that my drs say not because of tasigna. What Da... Im feeling some what confused.I have severe stomach pian, that travels round into my back, contious thrush and sores in mouth, very tired. and lots more. i have no support from the outside world.

Comment:
I am in remission, because of the tasigna,but i need to keep taking tasigna. I'm experimenting side effects that my drs say not because of tasigna. What Da... Im feeling some what confused.I have severe stomach pian, that travels round into my back, contious thrush and sores in mouth, very tired. and lots more. i have no support from the outside world.
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