Reviewer: Air Force, 65-74 Male on Treatment for 1 to 6 months (Patient)

Comment:
Now that I am doing it on my it hasn't been too bad. Had some minor weight gain and some joint pain. I have only been on it for 2 mos. so not sure yet what the results will be.

Comment:
Now that I am doing it on my it hasn't been too bad. Had some minor weight gain and some joint pain. I have only been on it for 2 mos. so not sure yet what the results will be.
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Reviewer: mashleyu, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I was on Hizentra for several years before switching to IVIG. I started out once weekly at 3 injection sites infusing for 4 hours. This proved to be too much for me (extreme aches and inability to function well at work). I talked to my doctor and we split the infusions to twice weekly at 2 injection sites still infusing each for 4 hours. This worked wonders. I premeditated with tylenol and benadry ... Show Full Comment

Comment:
I was on Hizentra for several years before switching to IVIG. I started out once weekly at 3 injection sites infusing for 4 hours. This proved to be too much for me (extreme aches and inability to function well at work). I talked to my doctor and we split the infusions to twice weekly at 2 injection sites still infusing each for 4 hours. This worked wonders. I premeditated with tylenol and benadryl to help with the site reaction and eventually was able to cut out the benadryl. When I was consistent with my treatment it lowered my infections significantly and had more energy than ever. Unfortunately the infusions were difficult to maintain. I had to work half days the day after treatments to be able to recover and when I became less and less consistent in doing the treatments my doctor and I decided to go to IVIG once monthly. Downside: time commitment each week interfering with personal/professional life Upside: levels stay more consistent due to lower doses more frequently
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Reviewer: PatientzLikeUs, 35-44 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
Used to be on Vivaglobin, then was switched to Hizentra the last 4-5 years or so. While I'm happy to not be sick all the time, I really don't like this stuff at all. I find I am very achy (joints, muscles, etc) and very tired all the time. I've learned how to deal with the fatigue, but the pain is something else. And yes, when you have an immune disorder, it opens the door to other imm ... Show Full Comment

Comment:
Used to be on Vivaglobin, then was switched to Hizentra the last 4-5 years or so. While I'm happy to not be sick all the time, I really don't like this stuff at all. I find I am very achy (joints, muscles, etc) and very tired all the time. I've learned how to deal with the fatigue, but the pain is something else. And yes, when you have an immune disorder, it opens the door to other immune issues as well. So now I have Fibromyalgia-which is a side effect of Hizentra-of making it "shelf-stable" instead of keeping it in the refrigerator. I've also developed a couple of other issues as well, just great! Maybe I would like this better if my primary doctor would give me something for the pain...Tylenol just doesn't cut it. But I guess it could be worse. I could be back at the ER and on tons of antibiotics like I used to be. May God bless all of us with our immune disorders!
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Reviewer: jl, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I had local reactions but now take advil and zyrtec beforehand and that helps alot with local swelling and irritation. It has boosted my immunity to colds and such, infuse once a week. Lately am crashing on day six so may want to go more often. Been on it for 1.5 years with few issues. I was checking here cause I just go a diffuse rash over half my body and wondered if from hizentra. Will check w ... Show Full Comment

Comment:
I had local reactions but now take advil and zyrtec beforehand and that helps alot with local swelling and irritation. It has boosted my immunity to colds and such, infuse once a week. Lately am crashing on day six so may want to go more often. Been on it for 1.5 years with few issues. I was checking here cause I just go a diffuse rash over half my body and wondered if from hizentra. Will check with dr.
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Reviewer: hcocchi, 65-74 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I have been on this medication for approx 5 years. Without it I have spent lots of time in the hospital. Since I have been on this 1 time a week, I have been much better. I have trouble with joint pain but I would rather the pain than the hospital.

Comment:
I have been on this medication for approx 5 years. Without it I have spent lots of time in the hospital. Since I have been on this 1 time a week, I have been much better. I have trouble with joint pain but I would rather the pain than the hospital.
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