Reviewer: sand123, 7-12 Male on Treatment for 1 to less than 2 years (Caregiver)

Comment:
My son is 11years old and has been on Hizentra for almost 2years. In this time he has been fatigued more than normal.Also his PFT is lower than when he was on his last medication.He bruises with every bump.I have expressed my concern to his physician and she's not as concerned as I am.I'm not sure this is related or not.If anyone out there has experienced these symptoms.I would greatly app ... Show Full Comment

Comment:
My son is 11years old and has been on Hizentra for almost 2years. In this time he has been fatigued more than normal.Also his PFT is lower than when he was on his last medication.He bruises with every bump.I have expressed my concern to his physician and she's not as concerned as I am.I'm not sure this is related or not.If anyone out there has experienced these symptoms.I would greatly appreciate the advice.
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Reviewer: 45-54 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I have been taking his entire for over a year with good results. The only thing I have experienced is weight gain. I keep getting told its not the drug but I disagree. I have gained about 20 pounds in the last year.

Comment:
I have been taking his entire for over a year with good results. The only thing I have experienced is weight gain. I keep getting told its not the drug but I disagree. I have gained about 20 pounds in the last year.
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Reviewer: AW, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
I could not tolerate Hizentra for many reasons, primarily the decrease in breathing capacity , the fevers, the headaches and extreme fatigue I had to pre-dose with prednisone & during the infusion, had to take more prednisone & for 2 days afterwards. No wonder that I gained weight that is hard to lose! Also, very strange dreams while on this durg & unusual rashes which still appear ev ... Show Full Comment

Comment:
I could not tolerate Hizentra for many reasons, primarily the decrease in breathing capacity , the fevers, the headaches and extreme fatigue I had to pre-dose with prednisone & during the infusion, had to take more prednisone & for 2 days afterwards. No wonder that I gained weight that is hard to lose! Also, very strange dreams while on this durg & unusual rashes which still appear every once in a while for no apparent reason. Id rather suffer from a low immune system than be on this drug for the rest of my life!
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Reviewer: Nana, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was on IVIG for years, but my veins were done. I also wanted to be prooactive about my care. On sub-q since last Christmas. Did have a few troubles, but my dispensing doctor is not very familular with this medication. I am transfering drs. Gained a little weight, but came off. The day of and day after are not good, but can function somewhat if I need to. I have got the infussion sites running we ... Show Full Comment

Comment:
I was on IVIG for years, but my veins were done. I also wanted to be prooactive about my care. On sub-q since last Christmas. Did have a few troubles, but my dispensing doctor is not very familular with this medication. I am transfering drs. Gained a little weight, but came off. The day of and day after are not good, but can function somewhat if I need to. I have got the infussion sites running well and am overall happy with this treatment.
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Reviewer: Garliclover, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
I have recently moved from Vivaglobin to Hizentra. The side effects are similar however chest discomfort dizziness and fatigue are apparent, I have been administering 7wks now. The soreness at injection site is quite a discomfort for 6 days after - the biggest negative.

Comment:
I have recently moved from Vivaglobin to Hizentra. The side effects are similar however chest discomfort dizziness and fatigue are apparent, I have been administering 7wks now. The soreness at injection site is quite a discomfort for 6 days after - the biggest negative.
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