Reviewer: liljeanne, 35-44 on Treatment for 1 to 6 months (Patient)

Comment:
I had to have the slowest infusion rate possible due to nausea vomiting fatigue. And it is not the most comfortable of treatments no matter how long or thin the needle subQ is still subQ. BUT that being said my immune system has responded beautifully to the Hizentra!!! I have NOT been in the hospital for an infection since I started it. Normal oral antibiotics work now. I feel better in gener ... Show Full Comment

Comment:
I had to have the slowest infusion rate possible due to nausea vomiting fatigue. And it is not the most comfortable of treatments no matter how long or thin the needle subQ is still subQ. BUT that being said my immune system has responded beautifully to the Hizentra!!! I have NOT been in the hospital for an infection since I started it. Normal oral antibiotics work now. I feel better in general. still taking naps and having iv iron infusions at times but my immune system is much better. normal white cell counts which has happened in over 2 years.
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Reviewer: Grams, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I have been satisfied with Hizentra, as it pertains to ease of use and my ability to stay off antibiotics and steroids. However, I am suffering quite a lot with severe joint pain. I was told by both the pharmacist and my Immunologist, that this was not a very common side effect. The pain is often debilitating. I do have arthritis, but my joint and bone pain has gotten SO MUCH WORSE, since I have b ... Show Full Comment

Comment:
I have been satisfied with Hizentra, as it pertains to ease of use and my ability to stay off antibiotics and steroids. However, I am suffering quite a lot with severe joint pain. I was told by both the pharmacist and my Immunologist, that this was not a very common side effect. The pain is often debilitating. I do have arthritis, but my joint and bone pain has gotten SO MUCH WORSE, since I have been on Hizentra (19 months). I began using Cymbalta and still have pain. The Hizentra was recently cut by 1mg. But, that was only 10 days ago. And, as of my typing of this, I have not found a significant reduction in the pain. Has anyone else experienced this?
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Reviewer: Cathy, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I wrote a review on this in 2012 I think. I must say I am not liking the side effects I get from Hizentra. I have CVID. My coughing gets worse for days after I infuse, I am fatigued, lite headed, headaches, just everything hurts. I have these effects until it is time to infuse again. I infuse in 3 sites 50ML (10grams) weekly, but I am thin and am noticing caved in places on my thighs where I infus ... Show Full Comment

Comment:
I wrote a review on this in 2012 I think. I must say I am not liking the side effects I get from Hizentra. I have CVID. My coughing gets worse for days after I infuse, I am fatigued, lite headed, headaches, just everything hurts. I have these effects until it is time to infuse again. I infuse in 3 sites 50ML (10grams) weekly, but I am thin and am noticing caved in places on my thighs where I infuse. I will say Hizentra prevented my numerous bouts of bronchitis, etc. and due to an insurance change I was without infusions for over 5 weeks and ended up in hospital with severe lung infection and problems, but since re-starting this I have seemed to be sick entire time. I truly don't know what to do!! To any others I too get horrible chest discomfort with this drug and just generally feel sick. I'm going to ask my doctor about switching to something else. I did develop seizure disorder, but I think most are saying that is due to the Lupus I have, but I find it odd it never happened until after being on Hizentra for probably a year at that time. I can't stand the pain it causes....
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Reviewer: Cindy, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
Sometimes I get lightheaded and dizzy during infusions and sometimes itch during them at the sites, and my knees seem worse (arthritis) but otherwise it seems fine. And no sinus infection at the moment, or bronchitis! For a month! Wow.

Comment:
Sometimes I get lightheaded and dizzy during infusions and sometimes itch during them at the sites, and my knees seem worse (arthritis) but otherwise it seems fine. And no sinus infection at the moment, or bronchitis! For a month! Wow.
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Reviewer: 75 or over Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have been self-infusing Hizentra every 2 weeks for 6 months, and find the procedure quite easy to do now that I have been trained by a nurse. My immune system has improved greatly. However, I usually feel quite "off" for a day or two after treatment(I do take tylenol and allegra before each treatment), and now after reading other patient's comments, I realize the fatigue could be c ... Show Full Comment

Comment:
I have been self-infusing Hizentra every 2 weeks for 6 months, and find the procedure quite easy to do now that I have been trained by a nurse. My immune system has improved greatly. However, I usually feel quite "off" for a day or two after treatment(I do take tylenol and allegra before each treatment), and now after reading other patient's comments, I realize the fatigue could be caused by the infusions. I will check with my immunologist. I am very pleased to have my defenses against bacteria greatly improved, but Hizentra does not aid my "T" cells, so I'm still quite vulnerable to viruses. Since I've spent a lot of time before infusions fighting bronchitis and pneumonia, I find myself avoiding social events because I'm so afraid of picking up a virus. Anyone out there with this immune disorder figure out how to be more a part of "life" while avoiding getting viral infections that put you under for 6 months?
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