Reviewer: farmgirl, 55-64 on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have been using Hizentra for 43 weeks. I infuse sub q once weekly. For the first few weeks, I felt very tired and achy for a couple of days after treatment. I talked with the on-call pharmacist who recommended using a slower flow rate, from 900 to 600; made a tremendous improvement in side effects!! I can't say enough about my treatment plan...it has literally given my life back to me and my ... Show Full Comment

Comment:
I have been using Hizentra for 43 weeks. I infuse sub q once weekly. For the first few weeks, I felt very tired and achy for a couple of days after treatment. I talked with the on-call pharmacist who recommended using a slower flow rate, from 900 to 600; made a tremendous improvement in side effects!! I can't say enough about my treatment plan...it has literally given my life back to me and my family. I haven't been hospitalized this year!! I would like to mention that I have begun to notice the last few weeks that my energy level drops and my fatigue increases a couple of days before time for my next infusion. The pharmacist is consulting with my doctor about infusing twice weekly (same dosage, split into 2 doses) to hopefully remedy the problem. It is regretful that physicians often have difficulty recognizing when a patient who is having certain illnesses for no apparent reason needs to be examined closely for "outside the box" diseases. I have irreversible lung damage but just as scary is the bone necrosis I have developed, most likely a result of steroids prescribed for breathing issues. Makes me very sad.
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Reviewer: George Hoyt, 65-74 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
Cancer treatment with Rituxain detroyed my immune system and gave me Erythrocitosis which causes my bones to produce too many red blood cells. I have to have phlebotomies once a month to prevent strokes. But I am a huge fan of Hyzentra. It has given me my life back again. Without it I had pneumonia or brochitus almost all the time. Now that I have taken Hyzentra for 70 weeks I am so grateful ... Show Full Comment

Comment:
Cancer treatment with Rituxain detroyed my immune system and gave me Erythrocitosis which causes my bones to produce too many red blood cells. I have to have phlebotomies once a month to prevent strokes. But I am a huge fan of Hyzentra. It has given me my life back again. Without it I had pneumonia or brochitus almost all the time. Now that I have taken Hyzentra for 70 weeks I am so grateful for this miracle drug and easy process. I haven't been sick since I started using it!! My only complaint is that it makes me very fatigued with the slightest exercise...but I am persisting.
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Reviewer: Ladydog1, 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
Just wanted to add that I have had bruising also which I didn't realize was related until I saw other reviews. Also, this is only the second time I have used it and have had moderate to severe nausea from day 2-5. Supposed to start again in 2 days. Also have some mild itching at the sites. My doctor thinks larger needles may help with the site reactions but has anybody had nausea this long?

Comment:
Just wanted to add that I have had bruising also which I didn't realize was related until I saw other reviews. Also, this is only the second time I have used it and have had moderate to severe nausea from day 2-5. Supposed to start again in 2 days. Also have some mild itching at the sites. My doctor thinks larger needles may help with the site reactions but has anybody had nausea this long?
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Reviewer: Ladydog1, 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
I was on monthly IV Privigen which I tolerated well except for some fatigue the day after injection. Because of my new insurance, I have to do weekly self infusions of Hizentra. I am in the medical field and have had only 2 injections but find the whole process extremely ridiculous with 4 sites and spaghetti thin catheters. It is also time consuming: set up 50 minutes, infusion 2 hrs. The nex ... Show Full Comment

Comment:
I was on monthly IV Privigen which I tolerated well except for some fatigue the day after injection. Because of my new insurance, I have to do weekly self infusions of Hizentra. I am in the medical field and have had only 2 injections but find the whole process extremely ridiculous with 4 sites and spaghetti thin catheters. It is also time consuming: set up 50 minutes, infusion 2 hrs. The next 2-3 days had severe reaction to sites, baseball sized redness and edema as well as severe nausea. Even felt like I got a cold the second time with malaise and an earache! I know I have to give it time to see if it reduces my infections but right now, I am ready to quit. Won't even consider traveling with all the necessities!Would love to go back to monthly infusions! And I pray I don't gain wait. 2nd time did have itching in scalp.
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Reviewer: Weeks1590, 65-74 on Treatment for 6 months to less than 1 year (Patient)

Comment:
Have begun having head itching and lips tingling no rash has anyone else experienced this side effect also seem to be developing other allergies since switching from gamma gaurd

Comment:
Have begun having head itching and lips tingling no rash has anyone else experienced this side effect also seem to be developing other allergies since switching from gamma gaurd
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