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    Read user comments about the side effects, benefits, and effectiveness of Hizentra subcutaneous.

    Overall User Ratings

    54 Total User Reviews

    User Reviews

    1-5 of 40 Next»
    Condition: Primary Immune Deficiency Disorder
    1/2/2021 9:47:35 PM

    Reviewer: vfletcher, 55-64 on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 2

    Satisfaction

    Current Rating: 4

    Comment:
    I would love it if they would package it in a daily pod that i could attach/inject and get a daily dose slowly (like an insulin pump) and the only interaction I need is attaching and removing. I have done the weekly schedule, and find the daily injection suits me better, but its pretty fiddly given available solutions.

    Condition: Primary Immune Deficiency Disorder
    11/14/2019 8:02:23 PM

    Reviewer: Ohio Girl, 55-64 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 2

    Ease of Use

    Current Rating: 2

    Satisfaction

    Current Rating: 2

    Comment:
    The side effects have been horrible--headache, nausea, lightheaded, loss of appetite, diarrhea and significant joint pain. Also, the infusion sites (2) have been painful, red , swollen, and bruised. I have stopped using.

    Condition: Primary Immune Deficiency Disorder
    2/7/2019 6:53:17 PM

    Reviewer: Helen, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I have been infusing 10g/week Hizentra for 2 years now and it has worked wonders. I highly recommend: drinking two quarts electrolyte water day before, day of and day after infusion to minimize side effects. (I use Ultima) I also use Benadryl (1 capsule) as pre treatment to minimize side effects.

    Condition: Primary Immune Deficiency Disorder
    8/12/2018 11:52:46 PM

    Reviewer: Nic, 35-44 on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 1

    Comment:
    I have not been sick. I do subQ weekly of 9 grams. The side effects are terrible. My legs feel like jello, headaches, bottom eye lids are red, I stay hungry, bedrest fatigue still, brain fog. I have been using it for 5 weeks. I am not fond of needles. So it is bothersome for me. I stay swollen for days from the sites and itch at the sites.

    Condition: Primary Immune Deficiency Disorder
    8/10/2017 3:13:21 PM

    Reviewer: 45-54 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 2

    Comment:
    I have had weekly infusions with Hizentra since May. I have not had any infections, but the side effects have been horrible--headache, nausea, lightheaded, loss of appetite, diarrhea and significant joint pain. Also, the infusion sites (2) have been painful--red, swollen, and bruised. I have stopped using it and my doctor is recommending a different product.

    1-5 of 40 Next»

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