Reviewer: Fee, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
Im not sure with Gilenya as I have more symptoms and not sure if its MS or the drug! I have lower back pain and down the Left leg numbness chest area which I didnt have starting this drug.My numbness right side of my head has gone which is good. I have a MRI shortly on brain and spine to compare with last year and see Neuro which will be interesting.

Comment:
Im not sure with Gilenya as I have more symptoms and not sure if its MS or the drug! I have lower back pain and down the Left leg numbness chest area which I didnt have starting this drug.My numbness right side of my head has gone which is good. I have a MRI shortly on brain and spine to compare with last year and see Neuro which will be interesting.
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Reviewer: jerry1, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
HORRIBLE SIDE EFFECTS: starting the first month: cough, brief headaches daily, loss of balance, muscle cramps in leg and arm that were already weakened by secondary progressive relapsing MS. By fifth month: Worst 2 day pain ever in every muscle and joint of my body, falling every other day, seeing things moving that weren't moving, blurred vision, sore throat, hair loss, dry skin forgetting w ... Show Full Comment

Comment:
HORRIBLE SIDE EFFECTS: starting the first month: cough, brief headaches daily, loss of balance, muscle cramps in leg and arm that were already weakened by secondary progressive relapsing MS. By fifth month: Worst 2 day pain ever in every muscle and joint of my body, falling every other day, seeing things moving that weren't moving, blurred vision, sore throat, hair loss, dry skin forgetting what I was saying mid-sentence, not to mention word recall. All this and more. At first I thought it was my MS getting worse, Stopped Gilenya, side effects getting better, then SEVERE MUSCLE PAIN RETURNED in three weeks, along with swallowing difficulty. Did these horrible side effects go away for anyone that experienced them even after stopping gilenya?
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Reviewer: Rachel, 45-54 Female on Treatment for less than 1 month (Patient)

Comment:
Took Gilenya for 12 days and experienced several serious side effects and an onset of the disease it's meant to protect you from, MS. My symptoms included, dizziness, vertigo, balance issues, upset stomach, weakness and tiredness, heart palpation s and chest tightness,diarrhea, light sensitivity and headaches. When I stopped taking Gilenya these symptoms left after a couple of days but was l ... Show Full Comment

Comment:
Took Gilenya for 12 days and experienced several serious side effects and an onset of the disease it's meant to protect you from, MS. My symptoms included, dizziness, vertigo, balance issues, upset stomach, weakness and tiredness, heart palpation s and chest tightness,diarrhea, light sensitivity and headaches. When I stopped taking Gilenya these symptoms left after a couple of days but was left with really bad MS symptoms. I was healthy before I started this med and only took it because I'm always encouraged by health care workers to take meds to keep healthy. I'm back to a good diet, exercise and healthy supplements and NO MEDS!
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Reviewer: 25-34 Female on Treatment for 1 to 6 months (Patient)

Comment:
I’m 26 years old and I was diagnosed with MS about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever taken for MS. At the same time, I started taking an orthomolecular treatment (bi ... Show Full Comment

Comment:
I’m 26 years old and I was diagnosed with MS about a year and a half ago. I’m very asymptomatic, this means my symptoms may go unnoticed. Weakness in my legs and arms, and lack of sensitivity in my face are included on the symptoms I felt. 4 months ago I started the Gilenya treatment, the one and only drug I have ever taken for MS. At the same time, I started taking an orthomolecular treatment (big dose of vitamins and minerals) that my alternative Dr. – not neurologist – recommended. Also, moved on to a healthier lifestyle; I changed my ingesting habits (organic food and paleo diet), started making exercise a habit, and controlled my stress levels. A week ago, I received the results from my last MRI and not only NO new activity wasn’t found, but actually, 2 of the 3 existing lesions were GONE!! My neurologist, a typical poker-face Dr., was shocked with the results. His eyes were coming off his face due the shock. I don’t really know which one of the treatments helped, or if it was a combination of all of them (Gilenya, the alternative treatment and lifestyle), but I do know I’m feeling like I haven’t felt in a year. I have never cried tears of happiness this hard in my entire life. I will keep fighting MS, with Gilenya, alternative treatment, and lifestyle until it’s completely gone.
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Reviewer: MommiZ, 25-34 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I have been taking Gilenya for a year now. I have a very stressful job and would have a relapse about every 3 months. I have not had a relapse with Gilenya. I feel like my old self. I definitely don't feel 100% if I forget to take the pill. I feel a bit off. So I make every effort to take it every day.

Comment:
I have been taking Gilenya for a year now. I have a very stressful job and would have a relapse about every 3 months. I have not had a relapse with Gilenya. I feel like my old self. I definitely don't feel 100% if I forget to take the pill. I feel a bit off. So I make every effort to take it every day.
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