Reviewer: dhaniboi, 35-44 Male on Treatment for less than 1 month (Patient)

Comment:
The doctor at first had me on half a pill twice a day for a week then 1 pill in am and have at night. I was then increasesd to 10 mg pills twice a day, brought on 1 dropp attack and 3 complex partials in the next two days. It made me VERY constipated so was decreased to 15mg a day. still constipated but not as bad and seizures are down to 0-6 a day. I take 1 table spoon of olive oil everyother ... Show Full Comment

Comment:
The doctor at first had me on half a pill twice a day for a week then 1 pill in am and have at night. I was then increasesd to 10 mg pills twice a day, brought on 1 dropp attack and 3 complex partials in the next two days. It made me VERY constipated so was decreased to 15mg a day. still constipated but not as bad and seizures are down to 0-6 a day. I take 1 table spoon of olive oil everyother day and prune juice every other day
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Reviewer: Ihavequestions, 19-24 Female on Treatment for 6 months to less than 1 year (Caregiver)

Comment:
I provide support for a young woman that started having seizures when she was an hour old. Her parents have tried EVERYTHING imaginable to control her seizures and were mostly unsuccessful. Upon trying Onfi we noticed a significant decrease in seizure activity. This was along with many other seizure medications she was taking at the time. But she ended up going a remarkable 10 month period com ... Show Full Comment

Comment:
I provide support for a young woman that started having seizures when she was an hour old. Her parents have tried EVERYTHING imaginable to control her seizures and were mostly unsuccessful. Upon trying Onfi we noticed a significant decrease in seizure activity. This was along with many other seizure medications she was taking at the time. But she ended up going a remarkable 10 month period completely seizure free. All of a sudden this sweet, funny, happy going, mischievous young lady began to shine through. Very recently she began to have seizures again. She is having more than she used to before she started the Onfi, and they seem to be affecting her differently. Also, the PRN that she was getting before if she had so many in an 8 hour period is no longer working the way it used to. I was just wondering if anyone has any more information on this drug and if it's effectiveness wears off like this after a while?? Also, how are the effects of getting off a medication like this?? I read all of these testimonials about what the first week-6 months is like. Where is the long term information!? Anything will help, thank you for your time.
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Reviewer: 55-64 Female on Treatment for less than 1 month (Patient)

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Reviewer: FemaleMensan, 45-54 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
This is the first medication I had, on over 30 years, that controlled my seizures. I've been without a seizure for the past 16 months! In my past, the longest I was without seizures was 6 months. (My worry is if ONFI has any negative effect on my body. {I also worry that I taking Onfi is why I have problems sleeping!})

Comment:
This is the first medication I had, on over 30 years, that controlled my seizures. I've been without a seizure for the past 16 months! In my past, the longest I was without seizures was 6 months. (My worry is if ONFI has any negative effect on my body. {I also worry that I taking Onfi is why I have problems sleeping!})
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Reviewer: 19-24 Male on Treatment for 1 to 6 months (Patient)

Comment:
My 24 year old son takes 40mg of this drug and has really helped with his seizures. He also takes 600mg of vimpat with this drug. We hadn't been able to get him to go a week without seizures now he has been two months seizure free.

Comment:
My 24 year old son takes 40mg of this drug and has really helped with his seizures. He also takes 600mg of vimpat with this drug. We hadn't been able to get him to go a week without seizures now he has been two months seizure free.
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