Reviewer: Anonymous, 45-54 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
Unexpected status epilepticus first seizure in 2009 from head injury in 1995. Bad seizures continued every few months apart. Tried many medications, but only minor relief, but still passed out and lengthy mental confusion for weeks afterward. Currently taking 400mg Vimpat, 400 mg Lamotragine and 30mg Onfi. Have not had any seizures since starting Onfi. However, they started me at 40mg per day. Cau ... Show Full Comment

Comment:
Unexpected status epilepticus first seizure in 2009 from head injury in 1995. Bad seizures continued every few months apart. Tried many medications, but only minor relief, but still passed out and lengthy mental confusion for weeks afterward. Currently taking 400mg Vimpat, 400 mg Lamotragine and 30mg Onfi. Have not had any seizures since starting Onfi. However, they started me at 40mg per day. Caused me to fall over asleep constantly. Very dangerous. They have lowered my dose to 30mg a day, but I still find myself falling asleep during the day. I have fallen out of bus seats into aisles many times. So far I have not injured myself, but I also fall asleep standing up and wake up when I start to fall. Unfortunately, my neurologists are working at a specialty clinic for the poor and obviously for some tax or other benefit, as they don't even follow plans supposedly written in my charts. At this point I am having to act as my own doctor which I do not like. They told me that they wanted to lower my lamotragine from 700mg per day to 400mg. I did not have access to my next month's supply of lamotragine but I had extra Onfi. One other regular neurologist suggested that if I ran out of another drug I should raise Onfi back to 40mg until problem was worked out. This was how I lowered my lamotragine dosage and slowly returned to 30mg Onfi. I am frustrated with having to decide between lowering Onfi dosage to not fall down when sitting or standing and getting injured or having a seizure and getting the same injuries or worse. All of my indigent coverage for all medical conditions was canceled because of another pre-existing condition I have, so I have no medical coverage at all. I need a competent neurologist, but I am unemployed and living with my father. I am very frustrated that I have to go by bus to Mexico to buy my other prescriptions. On the bright side, I am thrilled that Onfi stopped my seizures and I can live with the other side effects apart from falling asleep.
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Reviewer: 19-24 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I've been taking 10mg twice daily for two years, along with 600mg of Lamotrigine, and since I have started the medication, I have been seizure free.

Comment:
I've been taking 10mg twice daily for two years, along with 600mg of Lamotrigine, and since I have started the medication, I have been seizure free.
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Reviewer: Jchapman6689, 19-24 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
I take 15mg in the morning and 20mg in the evening. I also take 8 Rufinimide pills a day but is not enough to stop my seizures. Since starting onfi I went from having 2-3 gran maul seizures a day to none for six months now. Very effective and minimal side effects. Hopefully I can start taking less Rufinimide pills a day and the Onfi will keep me seizure free alone, which I think it can.

Comment:
I take 15mg in the morning and 20mg in the evening. I also take 8 Rufinimide pills a day but is not enough to stop my seizures. Since starting onfi I went from having 2-3 gran maul seizures a day to none for six months now. Very effective and minimal side effects. Hopefully I can start taking less Rufinimide pills a day and the Onfi will keep me seizure free alone, which I think it can.
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Reviewer: valikgrl08, 25-34 Female on Treatment for less than 1 month (Patient)

Comment:
my son has seizures and this medicine with his Topamax has helped tremendously and calmed him and his seizures

Comment:
my son has seizures and this medicine with his Topamax has helped tremendously and calmed him and his seizures
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Reviewer: dhaniboi, 35-44 Male on Treatment for less than 1 month (Patient)

Comment:
The doctor had me start 1/2 a pill twice a day then upped me to 15 MG a day a 5 of the 9 days were seizure free(very rare) I then went upto 10MG pills twice a day. After 8 days I was extremely constipated. I was lowered back to 15MG a day but have yet to have another seizure free day. All bowel movementa during to 2 pills a day took peri-colace and/or prune juice.

Comment:
The doctor had me start 1/2 a pill twice a day then upped me to 15 MG a day a 5 of the 9 days were seizure free(very rare) I then went upto 10MG pills twice a day. After 8 days I was extremely constipated. I was lowered back to 15MG a day but have yet to have another seizure free day. All bowel movementa during to 2 pills a day took peri-colace and/or prune juice.
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