Reviewer: gucci, 55-64 on Treatment for 2 to less than 5 years (Patient)

Comment:
Used since December 2016, I have an aggressive myeloma that relapsed one year after a SCT. As with all treatment there is a period of adjustment., However, this along with Kyprolis has worked wonderfully., 100% better than Vecade and Cytoxin., been on it over 3 years with no relapse. none of the effects that patients who take Revlimed.

Comment:
Used since December 2016, I have an aggressive myeloma that relapsed one year after a SCT. As with all treatment there is a period of adjustment., However, this along with Kyprolis has worked wonderfully., 100% better than Vecade and Cytoxin., been on it over 3 years with no relapse. none of the effects that patients who take Revlimed.
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Reviewer: Linzo, 55-64 Male on Treatment for 1 to less than 2 years (Caregiver)

Comment:
Took this for my second outbreak of multiple myeloma and although it did bring my light chains down, I still developed plasma cytoma in my left arm and had to have radiation. I have now had my 2nd stem cell transplant and the dr wanted to use this drug for maintenance chemo. After one month, my light chains are above normal and after the 2nd month they are up 16% more. Looking to try something els ... Show Full Comment

Comment:
Took this for my second outbreak of multiple myeloma and although it did bring my light chains down, I still developed plasma cytoma in my left arm and had to have radiation. I have now had my 2nd stem cell transplant and the dr wanted to use this drug for maintenance chemo. After one month, my light chains are above normal and after the 2nd month they are up 16% more. Looking to try something else next month.
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Reviewer: Cloverdavid, 75 or over Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I was started on a 4 mg dose of Pomalyst about a year ago and was having problems, so the dose was dropped to milligrams. I still experienced all of the side effects listed for Pomalyst. This week, we reduced the Decadron dosage from 40 mg weekly to 20 mg weekly. The problem I was having with Decadron was that it either kept me awake for 40 hours during which I felt like I could paint the Sistine ... Show Full Comment

Comment:
I was started on a 4 mg dose of Pomalyst about a year ago and was having problems, so the dose was dropped to milligrams. I still experienced all of the side effects listed for Pomalyst. This week, we reduced the Decadron dosage from 40 mg weekly to 20 mg weekly. The problem I was having with Decadron was that it either kept me awake for 40 hours during which I felt like I could paint the Sistine Chapel ceiling with one hand tied behind my back, or it put me to sleep for that period of time. I never knew which would happen. As far as effectiveness, the main test my oncologist relies on is the M-protein (SPEP); my numbers have remained fairly constant for a year at 0.3 or 0.4. My oncologist once the number to get to 0.0 before he considers me to be in remission.
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Reviewer: Liz, 65-74 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I now have a blood clot in my right lung. I have been on the drug for over a year.

Comment:
I now have a blood clot in my right lung. I have been on the drug for over a year.
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Reviewer: Sierra, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
Side effects: open lesions inside vagina and anus are worst.

Comment:
Side effects: open lesions inside vagina and anus are worst.
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