Reviewer: Sindee , 55-64 on Treatment for 1 to 6 months

Comment:
This medication almost killed me. I lost 30 pounds and at 125 lbs and 5’10’ I did not need that. My short term memory was destroyed, I was so tired I could hardly walk. MyBP was 53/30 and it caused neuropathy in both hands which is now permanent. I could not eat and whatever I drank tasted like metal. This medication ruined mylife. My hair, fingernails and toenails fell out. I M now on disability. ... Show Full Comment

Comment:
This medication almost killed me. I lost 30 pounds and at 125 lbs and 5’10’ I did not need that. My short term memory was destroyed, I was so tired I could hardly walk. MyBP was 53/30 and it caused neuropathy in both hands which is now permanent. I could not eat and whatever I drank tasted like metal. This medication ruined mylife. My hair, fingernails and toenails fell out. I M now on disability. DO NOT EVER TAKE THIS!
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Reviewer: v.webb0828, 25-34 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was on trokendi XR 200 mg for about a year! My insurance stopped covering my usage because I was "prescribed too often" although I was under care of a neurologist during my treatment! Expensive and AWFUL side effects, I constantly felt spaced out and forgot words and sentences in the middle of speaking. I got more headaches while taking the medicine but they weren't as painful as m ... Show Full Comment

Comment:
I was on trokendi XR 200 mg for about a year! My insurance stopped covering my usage because I was "prescribed too often" although I was under care of a neurologist during my treatment! Expensive and AWFUL side effects, I constantly felt spaced out and forgot words and sentences in the middle of speaking. I got more headaches while taking the medicine but they weren't as painful as my regular migraines so I toughed it out. I finally had enough of all the side effects and went cold turkey, of course they immediately stopped a week after my last dosage.
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Reviewer: Mark, 55-64 on Treatment for 2 to less than 5 years (Patient)

Comment:
I developed cluster headaches at age 60. I tried topamax regular and had the same side effects as others have described. My neuro switched me to the 25mg XR, and no more side effects, and about 1 cluster headache per year now.

Comment:
I developed cluster headaches at age 60. I tried topamax regular and had the same side effects as others have described. My neuro switched me to the 25mg XR, and no more side effects, and about 1 cluster headache per year now.
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Reviewer: Debra, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
Was taking topiramate 25 twice daily, migraines down to 2-3 a month. Neuro had me start taking Trokendi XR 25, then 50. The migraine has come back to stay, and won't leave. If improvement doesnt happen soon going back on the topirmate 25 twice daily.

Comment:
Was taking topiramate 25 twice daily, migraines down to 2-3 a month. Neuro had me start taking Trokendi XR 25, then 50. The migraine has come back to stay, and won't leave. If improvement doesnt happen soon going back on the topirmate 25 twice daily.
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Reviewer: Huckie, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I started with 20 migraine days per month, and 0 headaches. My neurologist switched me from 100mg Topamax to 100mg Trokendi, which led to constant headaches on top of migraines. The neurologist increased dosage to 150mg after 2 months, then 200mg after another 2 months. I went to my primary, asked him to refer me to a different neurologist, and to reduce the Trokendi until I can get to the new one ... Show Full Comment

Comment:
I started with 20 migraine days per month, and 0 headaches. My neurologist switched me from 100mg Topamax to 100mg Trokendi, which led to constant headaches on top of migraines. The neurologist increased dosage to 150mg after 2 months, then 200mg after another 2 months. I went to my primary, asked him to refer me to a different neurologist, and to reduce the Trokendi until I can get to the new one. Trokendi has a 0% copay, which meant I still owed $48 dollars on a 30 day supply of the 200mg dosage. The coupons are good for a year. I checked online. The pharmaceutical company that owns Trokendi has made sure a generic wonâ??t be available for at least 3 years, meaning if I were to stay on this my copay will be a minimum of $300 come Feb 2020. Itâ??s already hellish to be on it after 4 months. I see no reason to stay on this drug.
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