Reviewer: blackschnauzer, 45-54 Male on Treatment for 1 to less than 2 years (Caregiver)

Comment:
My husband is 52. Has been on 340 mg Temodar since February 2008, taken 5 days on and 23 off immediately before going to bed w/Anzemet to avoid nauseated feeling. Very fatigued but keeping the tumor away. Short term memory is affected but can't say it is from the drug and not the surgery itself.

Comment:
My husband is 52. Has been on 340 mg Temodar since February 2008, taken 5 days on and 23 off immediately before going to bed w/Anzemet to avoid nauseated feeling. Very fatigued but keeping the tumor away. Short term memory is affected but can't say it is from the drug and not the surgery itself.
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Reviewer: 19-24 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My father is 46 and was on this for 42 days with radiation and then once this was done he did 5 days of 300 mg once a month. This was done for 3 months until the tumor had begun to grow again. So, it made the tumor stable for only a short time. Now on IV avastin and camptosar...so far so good, doing great.

Comment:
My father is 46 and was on this for 42 days with radiation and then once this was done he did 5 days of 300 mg once a month. This was done for 3 months until the tumor had begun to grow again. So, it made the tumor stable for only a short time. Now on IV avastin and camptosar...so far so good, doing great.
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Reviewer: camaroman, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
I am on 42 day treatment paired with radiation. until recently no side effects, now experiencing smothering effect anywhere from 2 to 7 hrs. after taking. cannot lay on back and breath during this time. eventually it subsides and I can go to bed. Has anyone else experienced these symptoms? I might mention during this time there is acute discomfort at bottom of left fib cage and tenderness in c ... Show Full Comment

Comment:
I am on 42 day treatment paired with radiation. until recently no side effects, now experiencing smothering effect anywhere from 2 to 7 hrs. after taking. cannot lay on back and breath during this time. eventually it subsides and I can go to bed. Has anyone else experienced these symptoms? I might mention during this time there is acute discomfort at bottom of left fib cage and tenderness in chest muscle.
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Reviewer: 25-34 Female on Treatment for 2 to less than 5 years (Caregiver)

Comment:
My mother has been on this drug for 2.5 yrs now. I am wanting to know if anyone else can validate the side effects we (family) are seeing are due to the drug. She is a completely different person from then to now. Many side effects we are seeing are lack of concentration, short term memory, personaltiy changes, moody, trouble with numbers-cognitive changes, equalibrium is completely off and can no ... Show Full Comment

Comment:
My mother has been on this drug for 2.5 yrs now. I am wanting to know if anyone else can validate the side effects we (family) are seeing are due to the drug. She is a completely different person from then to now. Many side effects we are seeing are lack of concentration, short term memory, personaltiy changes, moody, trouble with numbers-cognitive changes, equalibrium is completely off and can not walk far w/out asst., fatigue all the time, etc.... Please could some one out there tell me these are from the chemo drug? I asked my mom's dr and he could not provide me with as answer, because I do not think he knows what Temodar can do to people longterm......
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Reviewer: scott, 35-44 Male on Treatment for less than 1 month (Patient)

Comment:
began treatment 2 weeks ago so far no side effects

Comment:
began treatment 2 weeks ago so far no side effects
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