Reviewer: RLR, 55-64 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
Diagnosed with GBM4 on 12/15/2008 surgery on 1/13/2009 to remove 7.5cm tumor.I also had 6 gliodel wafers at time of surgery. Started on Temodar about 1/19/09 and 30 treatments of radiation about the same time.Have now been on 250 mg of Temodar 5 days on 3 weeks off for 4 years and 3 months as of 4/16/13. Last 3 MRI's have came back with no sign of the cancer!!Biggest problem is fatigue, I cons ... Show Full Comment

Comment:
Diagnosed with GBM4 on 12/15/2008 surgery on 1/13/2009 to remove 7.5cm tumor.I also had 6 gliodel wafers at time of surgery. Started on Temodar about 1/19/09 and 30 treatments of radiation about the same time.Have now been on 250 mg of Temodar 5 days on 3 weeks off for 4 years and 3 months as of 4/16/13. Last 3 MRI's have came back with no sign of the cancer!!Biggest problem is fatigue, I consider myself at about 95%. I can do most everything I did before surgery, now I just take more short naps.
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Reviewer: JohnS, 65-74 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
Diag April 2012, surgery to remove brain tumor on Jun 15, 2012, grade 2, put on Temodar 28 day cycle without rediation. Starting my 7th cycle this week. Have blood work on day 21 and 28 with MRI inbetween. To be on Temodar for one year. My MRIs have been good with no new growth. I have not had any lost work for norisa, do have the fatuigue in week one and week two of cycle. Have been able to ... Show Full Comment

Comment:
Diag April 2012, surgery to remove brain tumor on Jun 15, 2012, grade 2, put on Temodar 28 day cycle without rediation. Starting my 7th cycle this week. Have blood work on day 21 and 28 with MRI inbetween. To be on Temodar for one year. My MRIs have been good with no new growth. I have not had any lost work for norisa, do have the fatuigue in week one and week two of cycle. Have been able to work full time since six weeks after surgery exam.
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Reviewer: gene, 65-74 Male on Treatment for 6 months to less than 1 year (Patient)

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Reviewer: stressed, 45-54 on Treatment for 1 to 6 months (Patient)

Comment:
I have just started treatment, 5 days once a month. 2 weeks off so far. I completed a series of radiation first. Extreme fatigue a lot of non listed symptoms. My hair is increaded in loss from when it did from radiation. Has anyone experienced hair loss from Temodar? I was told it would not happen.

Comment:
I have just started treatment, 5 days once a month. 2 weeks off so far. I completed a series of radiation first. Extreme fatigue a lot of non listed symptoms. My hair is increaded in loss from when it did from radiation. Has anyone experienced hair loss from Temodar? I was told it would not happen.
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Reviewer: 55-64 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
Diagnosis on 12/24/09 with surgery on 1/4/10. 6 weeks of radiation with 180 mg of Temador. Continued Temador for another 8 months. MRI every two months. From the beginning I saw a naturalpath that specialized in Glioblastomas. Took ~100 supplements a day, down to 50 now. Recurrence in 10/11 as expected. I was told that there is an expectation that 90% will have a recurrence within two years. ... Show Full Comment

Comment:
Diagnosis on 12/24/09 with surgery on 1/4/10. 6 weeks of radiation with 180 mg of Temador. Continued Temador for another 8 months. MRI every two months. From the beginning I saw a naturalpath that specialized in Glioblastomas. Took ~100 supplements a day, down to 50 now. Recurrence in 10/11 as expected. I was told that there is an expectation that 90% will have a recurrence within two years. I am unable to work due to the memory issues. A 15 min nap at lunch solved the tiredness issue. I feel great and am living an otherwise normal life.
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