Reviewer: Pamela , 65-74 on Treatment for 1 to 6 months

Comment:
Nausea and gut disturbance fatigue jump from 40mg in conjunction with radiotherapy to 180mg 5 days a month not tolerating nil hazzles during RT#

Comment:
Nausea and gut disturbance fatigue jump from 40mg in conjunction with radiotherapy to 180mg 5 days a month not tolerating nil hazzles during RT#
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Reviewer: Cassie, 75 or over Male on Treatment for 1 to 6 months (Caregiver)

Comment:
My husband had surgery in August 2013 and had 90% of the tumor removed. Because of other unrelated medical issues, he didn't start the treatment until 6 weeks after surgery. He had 37 radiation treatments, 5 days/week and during that same period he took 160 mg of temodar 7 days/week. Towards the end of the treatment he became more and more confused, disoriented, restless, anxious and has insom ... Show Full Comment

Comment:
My husband had surgery in August 2013 and had 90% of the tumor removed. Because of other unrelated medical issues, he didn't start the treatment until 6 weeks after surgery. He had 37 radiation treatments, 5 days/week and during that same period he took 160 mg of temodar 7 days/week. Towards the end of the treatment he became more and more confused, disoriented, restless, anxious and has insomnia. He also hallucinates. Because of these symptoms, they have delayed the second round of Temodar, which will be a 5 day regimen per month. He has, at this moment, no quality of life. We cannot leave him alone at all because he panics and can't take care of any of his needs, such as dressing, showering, etc. Our family is awaiting an MRI on Jan 2nd to determine whether or not to continue treatment. At this point quality of life is our utmost concern. We want to give him every chance to extend his life, but at what cost? He is just existing right now.
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Reviewer: Caroline, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Diagnosed with GBM grade 4 in 1/13, had immediate surgery with full excision of tumor. Completed 6 weeks of radiation concurrent with 42 days straight of temodar. Now on monthly cycles as described by others in this post, taking the highest dose for my height and weight. So far, so good. MRIs show no recurrent tumor, only side effects have been fatigue and constipation. I will gladly put up with t ... Show Full Comment

Comment:
Diagnosed with GBM grade 4 in 1/13, had immediate surgery with full excision of tumor. Completed 6 weeks of radiation concurrent with 42 days straight of temodar. Now on monthly cycles as described by others in this post, taking the highest dose for my height and weight. So far, so good. MRIs show no recurrent tumor, only side effects have been fatigue and constipation. I will gladly put up with these as long as this continues to work. So very grateful to have this drug. God Bless all of my fellow GBM colleagues! Keep fighting, we can do it!!!
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Reviewer: life is good , 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
i was diagnosed sept 2011 with stage 4 glioblastoma and they treated me immediately with radiation and chemo. i was told 4-12 months for my survival rate. however, the tumour has just reappeared so now back on the treatments again. hopefully it will give me another couple of years.

Comment:
i was diagnosed sept 2011 with stage 4 glioblastoma and they treated me immediately with radiation and chemo. i was told 4-12 months for my survival rate. however, the tumour has just reappeared so now back on the treatments again. hopefully it will give me another couple of years.
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Reviewer: Cornishcough, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
Tumor found last weekend of January 2013, operated he following Tuesday, 7cm x 5cm x 3.5cm. Pathology determined it was GBM4. Have completed Phase I after surgery, 42 days on,with radiation for 34 days at the same time. Lost about 2/3rds of my hair in beaming areas of scalp. Had 1 month off. Am now on Phase II, 5 days on 23 days off, every month. No real problems experienced other than occasional ... Show Full Comment

Comment:
Tumor found last weekend of January 2013, operated he following Tuesday, 7cm x 5cm x 3.5cm. Pathology determined it was GBM4. Have completed Phase I after surgery, 42 days on,with radiation for 34 days at the same time. Lost about 2/3rds of my hair in beaming areas of scalp. Had 1 month off. Am now on Phase II, 5 days on 23 days off, every month. No real problems experienced other than occasional passing nausea and tiredness. Zofram has handled any stomach upset taken 1 hour before the temodar. MRIs and CTs so far good. CBCs good except for a .1 variation in liver enzymes, within norms. Have returned to work. Things so far are good.
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