Reviewer: NJ, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
Having to mix it with juice was very inconvenient and it sent my cholesterol to over 600!

Comment:
Having to mix it with juice was very inconvenient and it sent my cholesterol to over 600!
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Reviewer: 45-54 Female (Patient)

Comment:
Rapamune is very dangerous especially for liver patients. if you dont believe me ask your doctor. This drug can and will kill you. I am kidney transplant patient 19 years. The Rapamune which I was on caused VENO OCCLUSIVE DISEASE and PORTAL HYPERTENSION, tiny veins in the liver are blocked causing ascites. I need paracentesis weekly to remove fluid from my abdomen, 2.5 to 2.8L every procedure. No ... Show Full Comment

Comment:
Rapamune is very dangerous especially for liver patients. if you dont believe me ask your doctor. This drug can and will kill you. I am kidney transplant patient 19 years. The Rapamune which I was on caused VENO OCCLUSIVE DISEASE and PORTAL HYPERTENSION, tiny veins in the liver are blocked causing ascites. I need paracentesis weekly to remove fluid from my abdomen, 2.5 to 2.8L every procedure. Now I need a shunt in my neck called TIPS to help reduce the fluid. I wrote a previous review yesterday about the danger of this Rapamune but it was not published hopefully this one will.
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Reviewer: 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hopin ... Show Full Comment

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hoping to be taken off it soon before the lymphodemia gets worse.
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Reviewer: Junbug, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neu ... Show Full Comment

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neuropathy in my extremities. I was recently off Rapamune and noted the tingling in my hands and feet stopped. Has anyone else had this experience? Please so not misunderstand…I am very thankful for my second chance at life and enjoy each day but, I just wonder if there is a better drug for ME???? The tingling in my feet is a big distraction for me as it causes difficulty walking.
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Reviewer: Dede, 35-44 Female on Treatment for 10 years or more (Patient)

Comment:
I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.

Comment:
I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.
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