Reviewer: KatrinaM1921, 19-24 on Treatment for 2 to less than 5 years (Patient)

Comment:
It definitely helps the low iron, ferritin goes up quick with a few treatments. Iron pills do nothing due to years of stomach damage. I get 200mg a few times a year. My first time getting treated I felt horribly dizzy and sick at the very end like I was going to pass out, so they slowed it to two hours instead and that seems to help. I experience side effects like hot flashes, malaise, mild headac ... Show Full Comment

Comment:
It definitely helps the low iron, ferritin goes up quick with a few treatments. Iron pills do nothing due to years of stomach damage. I get 200mg a few times a year. My first time getting treated I felt horribly dizzy and sick at the very end like I was going to pass out, so they slowed it to two hours instead and that seems to help. I experience side effects like hot flashes, malaise, mild headache and exhaustion for a week or so after. But it works after that.
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Reviewer: Infused10, 35-44 on Treatment for 1 to less than 2 years (Patient)

Comment:
I have thalassemia and severe iron deficiency anemia accompanied by gastrointestinal issues. When my iron levels are depleted I experience palpitations, extreme fatigue, shortness of breath, bone pain, blurry vision, muscle cramps, chest pain, and nasty rashes on my lower limbs. Despite this, I made it to 35 years of age, without "needing" a blood transfusion. Truthfully, I probably need ... Show Full Comment

Comment:
I have thalassemia and severe iron deficiency anemia accompanied by gastrointestinal issues. When my iron levels are depleted I experience palpitations, extreme fatigue, shortness of breath, bone pain, blurry vision, muscle cramps, chest pain, and nasty rashes on my lower limbs. Despite this, I made it to 35 years of age, without "needing" a blood transfusion. Truthfully, I probably needed one before but was accustomed to coping with the symptoms and didn't freak out until my breathing was affected. I previously had been able to get by with extra rest and daily smoothies of spinach, kale, beets, and spirulina. In 2018, at the age 35 I needed a blood transfusion followed by 8 weekly venofer infusions. Halfway through the infusions it felt like I was on the moon. And the boost to my iron and ferritin levels lasted for 8 months. Although there are side effects (headache, stomach cramps, fatigue, brown urine, skin rash) to venofer infusion within the first 1-2 days of treatment, the pros far outweigh the cons. I wish I didn't have to receive infusions but I'm thankful this treatment is available.
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Reviewer: Twinkie, 45-54 Female on Treatment for less than 1 month (Patient)

Comment:
Had my first dose on the weekend had a bit of an allergic reaction such as rashes on my arms took a reactine and now I am fine. felt a bit crummy day after. Had this over 3 yrs ago and was feeling fantastic so starting again, I am hoping by round two next week I should start to feel better...

Comment:
Had my first dose on the weekend had a bit of an allergic reaction such as rashes on my arms took a reactine and now I am fine. felt a bit crummy day after. Had this over 3 yrs ago and was feeling fantastic so starting again, I am hoping by round two next week I should start to feel better...
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Reviewer: WinterSolstice, 35-44 on Treatment for 1 to 6 months (Patient)

Comment:
Due to damage from celiac my gut has a hard time absorbing iron. After months of oral iron and no change I received five venofer infusions one week apart. I didn't regain energy until the end of week three. The energy isn't booming but it's worlds better from where I was. My brain fog is slightly better, however it goes away completely when I'm on a paleo diet. I do think it's ... Show Full Comment

Comment:
Due to damage from celiac my gut has a hard time absorbing iron. After months of oral iron and no change I received five venofer infusions one week apart. I didn't regain energy until the end of week three. The energy isn't booming but it's worlds better from where I was. My brain fog is slightly better, however it goes away completely when I'm on a paleo diet. I do think it's take time for the body to heal from malnourishment so it's important to give yourself some time. It's not an overnight process. I had no reactions to this drug.
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Reviewer: Moxers, 35-44 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I've had to receive Venofer IVs as a series of 3, as per my hematologist's prescription for iron deficiency which becomes anemia if left alone. First of all, anyone with iron deficiency shoudl know that they must insist that docs check ferritin levels, not just RBC/Hem, etc. Second, be prepared for your urine to look like cola. I don't know why this happens, no one has explained but it ... Show Full Comment

Comment:
I've had to receive Venofer IVs as a series of 3, as per my hematologist's prescription for iron deficiency which becomes anemia if left alone. First of all, anyone with iron deficiency shoudl know that they must insist that docs check ferritin levels, not just RBC/Hem, etc. Second, be prepared for your urine to look like cola. I don't know why this happens, no one has explained but it's standard for me. Also, I get low blood pressure, dizziness and a weird sensation that my eyes aren't working right during infusing. I get mine spaced over 6 weeks and generally wind up with wildly inflated levels of ferritin in the weeks afterward. The assumption of my specialists is that I have this anemia/deficiency because I also have psoriasis, psoriatic arthritis... and that the inflammatory bowel disease and autoimmune atrophic gastritis prevents me from absorbing iron from food. In the past, I had to get emergency blood transfusions but now, as long as I get these, I am ok. The only issue is convincing the doc to infuse *before* my hemaglobin plummets because he doesn't like to prescribe it, even when my ferritin levels are in the teens if my hemaglobin is over 120. I have been told by a number of professionals that I shouldn't have symptoms of anemia from low ferritin alone but after years of dealing with this, their POV is entirely clinical and totally out of step with my actual experience of exhaustion, heart trouble, difficulty climbing the stairs to my home, worsening psoriatic disease symptoms and depression... which all become markedly reduced as soon as the iron kicks in, which usually takes at least a week or so for me to notice. PS. I think there's a link between iron deficiency and inflammation and I really wish that doctors were more concerned with this connection as well as the devastating effects of living with anemia. Overall, I'm happy with the product, it keeps me alive, not sure of any other alternative when one cannot tolerate/asorb oral iron.
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