Reviewer: Shellyhshell, 35-44 Female (Patient)

Comment:
I have polymyositis. I started ivig about 5 years ago. In the begining I had treatments biweekly and currently I go every 3 weeks for 2 days. When I first started treatment I was barely able to walk, now I am much stronger. In the begining it have me huge headaches however now that the hospital changed from the powder form too liquid form the headaches are rare. Last year I thought ivig wasn& ... Show Full Comment

Comment:
I have polymyositis. I started ivig about 5 years ago. In the begining I had treatments biweekly and currently I go every 3 weeks for 2 days. When I first started treatment I was barely able to walk, now I am much stronger. In the begining it have me huge headaches however now that the hospital changed from the powder form too liquid form the headaches are rare. Last year I thought ivig wasn't really helping but then I missed 2 treatments in a row and quickly went downhill to the point where it was very difficult to walk. I realized that the treatments were a great benifit. Getting a iv needle stuck in your arm every few weeks damages the vains and is Very painfull. If you are getting ivig on a regular basis I highly recomend getting a port. I wouldn't be as well of as I am today if ot wasn't for ivig. The treatments are ridiculously expensive, mine being over $20,000 a shot.
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Reviewer: halfwhit, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I have had dermatomyositis for about 6 years. I started IGIV about 6 months after being diagnosed, doing 4 half days a month. Changed it to 2 half days every two weeks to start. The first time was terrible. I had the first and worst migrane I had ever had. However, the side effects decreased to the point I haven't had migrane in years. I now get treatment once every 7 weeks. At first, I ... Show Full Comment

Comment:
I have had dermatomyositis for about 6 years. I started IGIV about 6 months after being diagnosed, doing 4 half days a month. Changed it to 2 half days every two weeks to start. The first time was terrible. I had the first and worst migrane I had ever had. However, the side effects decreased to the point I haven't had migrane in years. I now get treatment once every 7 weeks. At first, I could not walk, pick my self up if i fell, swallow... horrible. Now I have virtually no symtoms whatsoever. My PA says I am stronger than she is. My advise... Take it, keep your head down and keep moving. It'll be work it.
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