Reviewer: 55-64 Female (Patient)

Comment:
IVIG tried twice for polymyositis, I got meningits both times.

Comment:
IVIG tried twice for polymyositis, I got meningits both times.
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Reviewer: blahblahblah, 25-34 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I had to take this every month for a year because I have dermatomyositis. It helped me so much and I could always tell when it was time to get another treatment. It did cause me severe headaches after every treatment and it was always a pain to find an iv site. I'm currently in remission so I have not had this in two months but I'm finally doing better where I don't need it anymore. I ... Show Full Comment

Comment:
I had to take this every month for a year because I have dermatomyositis. It helped me so much and I could always tell when it was time to get another treatment. It did cause me severe headaches after every treatment and it was always a pain to find an iv site. I'm currently in remission so I have not had this in two months but I'm finally doing better where I don't need it anymore. I would recommend doing this for anyone who has dermatomyositis. I was falling and couldn't get up prior to taking this and now I'm so much better.
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Reviewer: max37, 75 or over Male on Treatment for 1 to 6 months (Patient)

Comment:
I am a male in my 70's and have Multifocal Motor Neuropathy, I am getting immune globulin , Starting out with 5 days in a row, I now get a doble dose two times a month.I had 8 infusion so far. I can not walk or get up from a chair. my muscles are all gone. so weak i need a wheel chair. What will help me gain my muscles back ?

Comment:
I am a male in my 70's and have Multifocal Motor Neuropathy, I am getting immune globulin , Starting out with 5 days in a row, I now get a doble dose two times a month.I had 8 infusion so far. I can not walk or get up from a chair. my muscles are all gone. so weak i need a wheel chair. What will help me gain my muscles back ?
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Reviewer: Kacky1945, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I received IVIG in Oct, Nov and Dec 08 for 2 consecutive days as an outpatient in a Boston Hosp for symptoms of Dermatomyositis. It helped my muscular weakness and balance problems significantly, but did little to help the skin problems of redness, heliotrope rash and intolerable itch , particularly of the scalp. A Dermatologist prescribed topical steroids to be used twice daily for 2 weeks, and ... Show Full Comment

Comment:
I received IVIG in Oct, Nov and Dec 08 for 2 consecutive days as an outpatient in a Boston Hosp for symptoms of Dermatomyositis. It helped my muscular weakness and balance problems significantly, but did little to help the skin problems of redness, heliotrope rash and intolerable itch , particularly of the scalp. A Dermatologist prescribed topical steroids to be used twice daily for 2 weeks, and then off for 1 week, and I have continued this program, with about 80% relief of the skin problems. I am most grateful for these IV and topical treatments which have improved the quality of my life greatly. I no longer fall down and have more strength in my arms and legs and can lift more weight than before Rx .My first Rheumatologist could not provide the IVIG regime (which I am continuing for 2 days on every third month), ie, on one month and off for two months. I got a second opinion and chose another Rheumatologist who arranged for the IVIG after MRIs and lab work and assessment. It has changed my life! I'm grateful that my insurance covers most of the cost. It is very expensive.
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Reviewer: GaryS, 65-74 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I was taking IGG-IV to prevent infections because of a depressed immune system (cancer for 20 years, including 8 yrs of chemo), but my neurologist and oncologist thought it might help with my peripheral neuropathy. It didn't. And finally I stopped it altogether because I was developing an adverse reaction to the treatment.

Comment:
I was taking IGG-IV to prevent infections because of a depressed immune system (cancer for 20 years, including 8 yrs of chemo), but my neurologist and oncologist thought it might help with my peripheral neuropathy. It didn't. And finally I stopped it altogether because I was developing an adverse reaction to the treatment.
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