Reviewer: vegasvictim, 35-44 Female on Treatment for less than 1 month (Patient)

Comment:
I also had a cysto with biopsy and was given 7 day course to prevent UTI. I took day after surgery with mild nausea. Second day I felt like I was coming down with the flu. #rd day in bed most of the day, chills, sweating, dizziness, weakness in left leg. Intense pain started in left big toe joint, and moved to include ankle. Kept me awake all night, along with violent vomiting. No fever, so I thou ... Show Full Comment

Comment:
I also had a cysto with biopsy and was given 7 day course to prevent UTI. I took day after surgery with mild nausea. Second day I felt like I was coming down with the flu. #rd day in bed most of the day, chills, sweating, dizziness, weakness in left leg. Intense pain started in left big toe joint, and moved to include ankle. Kept me awake all night, along with violent vomiting. No fever, so I thought I may have food poisoning or blood clot. Belly pains started same night and pulse was fast. My tongue felt slightly swollen 2nd day, but went away and came back next day. Scary scary stuff! I hope none of this is permanent or liver involved. My doctor's office said stop it immediately and called in Bactrim. I have shoulder, foot and ankle pain still. Nausea better....10 hours since last dose. BE CAREFUL with this medication and know these supposedly very rare side effects!! I somehow think they may not be as rare as maker claims. I will NEVER take this medication again. I thought I may of had a mild stroke or was getting a blood clot with the foot/ankle pain. I will ask doctor for blood tests on Wednesday follow-up visit to make sure my liver wasn't damaged. ALSO--we need to all call the FDA and report these side effects so they know how bad and common they are. Good luck everyone & God Bless.
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Reviewer: 55-64 Female on Treatment for 10 years or more (Patient)

Comment:
Took for 30 years, developed fluid around lungs caused by an irritant. No known cause of irritant. After reading these reviews am wondering and will notify my teaching doctor of my concerns.

Comment:
Took for 30 years, developed fluid around lungs caused by an irritant. No known cause of irritant. After reading these reviews am wondering and will notify my teaching doctor of my concerns.
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Reviewer: tdd, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I took the drug 9 weeks and the doctor stopped it. I was to take it 12 weeks. I have sores in my mouth, sores on my tongue, my mouth burns, loss of taste, and I'm worried the UTIs will return because I stopped this. After reading all these reviews I'm nervous. The first week on the drug I was very sick at my stomach but that stopped after changing to taking it at bedtime. Because I'm s ... Show Full Comment

Comment:
I took the drug 9 weeks and the doctor stopped it. I was to take it 12 weeks. I have sores in my mouth, sores on my tongue, my mouth burns, loss of taste, and I'm worried the UTIs will return because I stopped this. After reading all these reviews I'm nervous. The first week on the drug I was very sick at my stomach but that stopped after changing to taking it at bedtime. Because I'm staying closer to home I notice every ache and pain because of my inactivity. I need a 2nd knee replacement but there is no way to do this when you are having chronic infections. I'm very frustrated and not happy with the macrodantin. I don't want to take it again and I would like to get some relief in my mouth.
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Reviewer: bobjan, 55-64 Male on Treatment for 1 to less than 2 years (Caregiver)

Comment:
Follow up to 11/05/2010 Wife let go 11/14/2010. Death Certificate says nitrofurantoin tox likely caused death. Autopsy left no doubt Either nitrofur or nobody knows. I know. That is Macrodantin pure evil.Tell all. I do.

Comment:
Follow up to 11/05/2010 Wife let go 11/14/2010. Death Certificate says nitrofurantoin tox likely caused death. Autopsy left no doubt Either nitrofur or nobody knows. I know. That is Macrodantin pure evil.Tell all. I do.
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Reviewer: Patti M, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I am sitting here and can't believe what I have just read. I now have something similar to pneumonia brought on by consuming macro dantin for 1 1/2 yrs also. I can barely breath, talk or have any energy. The woman dying in ICU is so sad. I am almost there myself. I have a gall bladder stone operation scheduled for Monday and my lungs aren't really ready. I have 88% oxygen and must ex ... Show Full Comment

Comment:
I am sitting here and can't believe what I have just read. I now have something similar to pneumonia brought on by consuming macro dantin for 1 1/2 yrs also. I can barely breath, talk or have any energy. The woman dying in ICU is so sad. I am almost there myself. I have a gall bladder stone operation scheduled for Monday and my lungs aren't really ready. I have 88% oxygen and must exercise them. I guess the pneumonia like systems are worse than the real thing. It's a glue like substance that's in my lungs. I was hospitalized for 3 days this week and the ER doctor figured it out. The pulmonary doctor and surgeon all agreed. Why isn't this documented? And, why did my "wonderful" urologists not warn me of this? My family and I are stunned. I could be that woman dying in the ICU. I sound awful and my breathing is labored. Is it because I drink so much water that I am not at the point of dying like this woman? My mother said I should participate in a "class action suit". I totally agree. I was not warned and I should have been taken off this drug and perhaps put on another one for my recurring UTI's and bladder operations. I also have osteo arthritis - got to wonder if this was aggravated by this drug as well. I am in a lot of arthritis pain and now on Naproxen 1000 mg a day. I wish I didn't have to take any pills .
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