Reviewer: mermercollege, 19-24 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed with a prolactin secreting tumor in 2005. I had the surgery to have my tumor removed because it was not responding to the medication Dostinex. I contiuned on Dostinex after the surgery and my prolactin level has stayed slightly elevated. Around 38. My doctor chose to put me on Bromocriptine to see if my level would go down this time. I had my blood drawn today so now is the waiting ... Show Full Comment

Comment:
I was diagnosed with a prolactin secreting tumor in 2005. I had the surgery to have my tumor removed because it was not responding to the medication Dostinex. I contiuned on Dostinex after the surgery and my prolactin level has stayed slightly elevated. Around 38. My doctor chose to put me on Bromocriptine to see if my level would go down this time. I had my blood drawn today so now is the waiting game to see if the medication worked. If not I know there is a chance of having the Gamma Knife procedure. Has anyone else had this? I know there are very few places that perform it in the US. I will give an update soon of how the Bromocriptine affected my prolactin level. I have not experienced many bad side effects. Mainly nausea when i wake up in the mornings.
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Reviewer: vlprice, 35-44 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I've been on this med since 2003, I have experienced all the side effects from this med; stiff joints, headaches, nausea, costipation, no menstrual cycle for as long as 8 months, hi prolactin levels, hi bood pressure, fatigue, low energy, metalic taste in my mouth, dizziness, night sweats, sleepless nights. I always experience at least three or four of the symptoms at the same time and if I mi ... Show Full Comment

Comment:
I've been on this med since 2003, I have experienced all the side effects from this med; stiff joints, headaches, nausea, costipation, no menstrual cycle for as long as 8 months, hi prolactin levels, hi bood pressure, fatigue, low energy, metalic taste in my mouth, dizziness, night sweats, sleepless nights. I always experience at least three or four of the symptoms at the same time and if I miss a dose, I'm like a junky on drugs looking for my next hit! So I guess i'm hooked!!!When I take my missed dose, I feel somewhat better, that's until all the side effects start to kick in.
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Reviewer: 35-44 Female on Treatment for 10 years or more (Patient)

Comment:
I have been taking this med for over 20 years. I was diagnosed with a micropituitary adenoma when I was 19 and prescribed 2.5 mg - for the first 6 months or so I took this several times a day - after that, just once a day. I was never told to take this with food - figured that out on my own. Now it at least shows up on my presciption bottles! One side effect that I did have was while in colleg ... Show Full Comment

Comment:
I have been taking this med for over 20 years. I was diagnosed with a micropituitary adenoma when I was 19 and prescribed 2.5 mg - for the first 6 months or so I took this several times a day - after that, just once a day. I was never told to take this with food - figured that out on my own. Now it at least shows up on my presciption bottles! One side effect that I did have was while in college. At that time I did not have health insurance and the medicine was fairly expensive for a college student, so I tended to not take it as regularly as I should have. I would have fainting spells, that were never attributed to the meds. However, since I have been financially stable with health insurance and take the medicine every night before bed, I haven't had any issues for 15 years.
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Reviewer: 25-34 Female on Treatment for 1 to 6 months (Patient)

Comment:
I've been taking the 2.5 mg dose for 5 weeks now and it no longer affects me physically when I take it at night. The only time I was sick was on the second day. Still no period though (not that I really want it back!) I can't sleep worth anything - not sure if that's due to the medication or not. Nonetheless, it has stopped the physical symptoms I was having.

Comment:
I've been taking the 2.5 mg dose for 5 weeks now and it no longer affects me physically when I take it at night. The only time I was sick was on the second day. Still no period though (not that I really want it back!) I can't sleep worth anything - not sure if that's due to the medication or not. Nonetheless, it has stopped the physical symptoms I was having.
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Reviewer: Not liking the brain tumor, 35-44 Female on Treatment for 1 to 6 months (Patient)

Comment:
Well, 3 months on it now at 5mg. Still sleeplessness, achyness, fatigue, stuffiness (right after I take the pill), headaches and ocassional dizziness and vomiting. BUT, the good news is I had my first "normal" mentrual cycle in 9 months! I guess that means the drug is working. We'll see if it continues to happen. I'll see my doctor next week to check my prolactin levels. My HG h ... Show Full Comment

Comment:
Well, 3 months on it now at 5mg. Still sleeplessness, achyness, fatigue, stuffiness (right after I take the pill), headaches and ocassional dizziness and vomiting. BUT, the good news is I had my first "normal" mentrual cycle in 9 months! I guess that means the drug is working. We'll see if it continues to happen. I'll see my doctor next week to check my prolactin levels. My HG hormone is now low too, not sure what that means. I take this drug at night, after a sleeping pill and that seems to help me sleep through some of the symptoms.
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