Reviewer: Danny Hatt, 55-64 Male on Treatment for 10 years or more (Patient)

Comment:
I had my first seizure when I was 20. As long as I took my meds everyday, once a day, i was great. i am now 59. A brain tumor has appeared and I had surgery. i am now trying to fix the dosage level of the Dilantin. The doctor and i are discussing if the tumor is 40 years old and we think so. Anyway i am having a hard time to readjust, but hopefully will.

Comment:
I had my first seizure when I was 20. As long as I took my meds everyday, once a day, i was great. i am now 59. A brain tumor has appeared and I had surgery. i am now trying to fix the dosage level of the Dilantin. The doctor and i are discussing if the tumor is 40 years old and we think so. Anyway i am having a hard time to readjust, but hopefully will.
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Reviewer: John, 45-54 Male on Treatment for 10 years or more (Patient)

Comment:
I had my first seizure around age 25. I opted to wait for a second seizure before starting on medication, and ended up only having to wait a few months. I've been almost seizure-free since then - my lone episode happened after I had become lax in following the prescribed dosages, and my blood level fell quite low. Since that third seizure, though, I've been more diligent about following th ... Show Full Comment

Comment:
I had my first seizure around age 25. I opted to wait for a second seizure before starting on medication, and ended up only having to wait a few months. I've been almost seizure-free since then - my lone episode happened after I had become lax in following the prescribed dosages, and my blood level fell quite low. Since that third seizure, though, I've been more diligent about following the regimen. Results are all positive. In addition to controlling my seizures, I've been pretty much free of any adverse side effects. I am active and fit which probably helps.
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Reviewer: morag, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
My white blood cells continue to drop, and my dr has attributed this to Dilantin. Perhaps there should be a limit to its use (I have an Astrocytoma and it caused a seizure for 45 mins and had to be comatosed. I was initially on 600mg but my liver was so toxic I am on 300mg and have been for 14 months

Comment:
My white blood cells continue to drop, and my dr has attributed this to Dilantin. Perhaps there should be a limit to its use (I have an Astrocytoma and it caused a seizure for 45 mins and had to be comatosed. I was initially on 600mg but my liver was so toxic I am on 300mg and have been for 14 months
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Reviewer: Cowgirlup, 35-44 Female on Treatment for less than 1 month (Patient)

Comment:
I am taking extended Dilantin, my appetite is gone, nausea is here and so are migraines! I am taking the pills to please the Neurologist AND DMV. Well ok family too but am not convincinced I need them. I am dizzy from them all of the time and feel out of sorts. And I can't seem to quench my thirst. To boot I have had a gastric bypass so I shouldn't BE on anything extended as I don't a ... Show Full Comment

Comment:
I am taking extended Dilantin, my appetite is gone, nausea is here and so are migraines! I am taking the pills to please the Neurologist AND DMV. Well ok family too but am not convincinced I need them. I am dizzy from them all of the time and feel out of sorts. And I can't seem to quench my thirst. To boot I have had a gastric bypass so I shouldn't BE on anything extended as I don't absorb extended anymore because things pass thru my system too fast AND the last thing I need is a smaller appetite!! I already eat the serving of an egg as it is! This is all two weeks old for me and I spent 4 days in the hospital over my grand mal with all normal results of course and a quarter bit off tongue! Could stress do this??
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Reviewer: goodtimin2, 65-74 Male on Treatment for 10 years or more (Caregiver)

Comment:
In 1982 my wife suffered a TBI from an auto accident. She has had epilsepy since then and has always taken Dilantin; currently 100 mg 4 times daily. She also took Tegretol, but the side effects were so bad: balance control, slurred speech, double vision,etc that finally a very informed neurologist switched her to Keppra. Wow! What a great difference. She now takes, in conjunction with the Dilantin ... Show Full Comment

Comment:
In 1982 my wife suffered a TBI from an auto accident. She has had epilsepy since then and has always taken Dilantin; currently 100 mg 4 times daily. She also took Tegretol, but the side effects were so bad: balance control, slurred speech, double vision,etc that finally a very informed neurologist switched her to Keppra. Wow! What a great difference. She now takes, in conjunction with the Dilantin, 3,000 mg of Keppa each day (4x750). A lot of pills - but they work and the Tegretol side effects are gone. Now...Our insurance only cover 30 mg tablets of Dilantin which would require her to take over 83 tablets of Dilantin weekly compared to the 25 she now takes of the 100 mg dosage. Not fair - not realistic. Solution? Rather than paying out of pocket $62.50 for 100/100mg at our local pharmacy we order online from Canada; 400/100 mg for $59.00. Problem solved. BUT we always buy the actual Dilantin, not the generic. Living out in the boonies like we do where you either drive 30 some miles to the nearest medical facility or take your chances with 911 and the local volunteer fire department medics; we choose not to gamble with the generic after reading all the negative reviews. We also keep an emergency Diastat close by if needed. Hope this review is helpful.
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