Reviewer: 45-54 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
I send this email every January 10th because that is the day that my father passed away from an infection called sepsis that he developed by the method that they used to administer the drug Remodulin because he had developed pulmonary arterial hypertension. He first was administered this drug in November of 2007 and spent a month in the hospital. They used the intravenous IV infusion method in w ... Show Full Comment

Comment:
I send this email every January 10th because that is the day that my father passed away from an infection called sepsis that he developed by the method that they used to administer the drug Remodulin because he had developed pulmonary arterial hypertension. He first was administered this drug in November of 2007 and spent a month in the hospital. They used the intravenous IV infusion method in which they put a catheter in his arm. The doctor had told us that this was temporary and that they would be changing the method to the subcutaneous infusion method in which they were going insert a small catheter under the skin in his abdomen and the reason for this was because doctor Zawicki had told us that they do not like to leave it in the arm to long because there is more of a risk for infection. We kept asking when this procedure will be changed because my dad was doing really well with it and had finally started getting the color back in his face and was walking down the halls and was not losing his breath. We were thrilled that he was doing so well. Dr. Zawicki said she wanted to wait awhile because he was doing so well. December came and he still was in the hospital with the IV in his arm. We asked if he could get out for Christmas and then we would bring him back and they said that would be o.k. and we had a nurse come to the house to show us how to mix the remodulin and change the IV and then in January they would be changing to the subcutaneous infusion method. My dad collapsed on January 1st and we called the ambulance to take my dad back to the hospital because he was feeling very week and he was running a temperature. When my father arrived at the emergency room the nurses had very little knowledge of remodulin and what you do with it. My mother and I had a card that we were given by the nurse that came to the house who specialized in it and we explained it to the nurses in the emergency room. As the days went on my dad just kept getting worse so do
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Reviewer: cupcake, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
The site pain is so terrible. Usually after 6 days I need to chane the site or go out of my mind. I don't have any problem with anything else, just the site pain.

Comment:
The site pain is so terrible. Usually after 6 days I need to chane the site or go out of my mind. I don't have any problem with anything else, just the site pain.
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Reviewer: 35-44 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My father passed away 3 years ago because instead of doing the continuous intravenous infusion they administered it through a pick line that was in his arm. They left that pick line in to long instead of doing it the right way and he ended up getting an infection called sepsis and it killed him. As you can probably tell I am very bitter about this procedure and I think they need to do something a ... Show Full Comment

Comment:
My father passed away 3 years ago because instead of doing the continuous intravenous infusion they administered it through a pick line that was in his arm. They left that pick line in to long instead of doing it the right way and he ended up getting an infection called sepsis and it killed him. As you can probably tell I am very bitter about this procedure and I think they need to do something about how doctors handle this drug and that everyone needs to be made aware of how dangerous this drug can be. My dad just turned 70 years old and 1 year before he died he was still climbing tree's for deer hunting so he was a very active man.
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Reviewer: geno, 45-54 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I've been on remodulin for 1 1/2 yrs site pain is painful up to 2 wks ,nausia at times. pain in legs & hands.It has lowered right venticle pressure from 110 down to 61,so ikeep doing it and try to stay positive! Good luck to all .Geno

Comment:
I've been on remodulin for 1 1/2 yrs site pain is painful up to 2 wks ,nausia at times. pain in legs & hands.It has lowered right venticle pressure from 110 down to 61,so ikeep doing it and try to stay positive! Good luck to all .Geno
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Reviewer: mtnmartha@yahoo.com, 55-64 Male on Treatment for 2 to less than 5 years (Caregiver)

Comment:
On the 19June2009 my wife of 29 years and 6 months passed.When we viewed her in the E.R. we saw that her cronos pump showed that out of a 48 hour supply of her med,20ml,that in a 4.5 hour time since refill,the cronos infusion pump showed that 5ml had been dispensed.That is a near 300% dosage in my math.I have not received to my way of thinking a proper answer as to what happened.Now that I have r ... Show Full Comment

Comment:
On the 19June2009 my wife of 29 years and 6 months passed.When we viewed her in the E.R. we saw that her cronos pump showed that out of a 48 hour supply of her med,20ml,that in a 4.5 hour time since refill,the cronos infusion pump showed that 5ml had been dispensed.That is a near 300% dosage in my math.I have not received to my way of thinking a proper answer as to what happened.Now that I have read the overdose symptoms I am now convinced she suffered and died because of an overdose.I would be wary of the Cronos pump and its reliability. I am also suspect of the MDs involved. Gene Bono widower of Marie
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