Reviewer: Sandy, 55-64 on Treatment for 1 to 6 months

Comment:
I only made it 5 months on VFend, before I just couldn't take the side effects any more. It is still causing me issues, 2 months after stopping it. I felt like my body was being destroyed, it was horrible! If my infection comes back, I don't know what I'm going to do, but I will never take this medication again!!

Comment:
I only made it 5 months on VFend, before I just couldn't take the side effects any more. It is still causing me issues, 2 months after stopping it. I felt like my body was being destroyed, it was horrible! If my infection comes back, I don't know what I'm going to do, but I will never take this medication again!!
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Reviewer: 25-34 on Treatment for less than 1 month (Patient)

Comment:
I have been on this medication for a few weeks. Started with acidic feeling in stomach and throat then upper right abdominal pain. Lab work completed and liver/ kidney numbers elevated. Also potassium elevated. Medication placed on hold while waiting for medication trough lab results. In the mean time abdominal discomfort/ fullness, feet/ankle swelling, swelling of peri area, belly button, and ... Show Full Comment

Comment:
I have been on this medication for a few weeks. Started with acidic feeling in stomach and throat then upper right abdominal pain. Lab work completed and liver/ kidney numbers elevated. Also potassium elevated. Medication placed on hold while waiting for medication trough lab results. In the mean time abdominal discomfort/ fullness, feet/ankle swelling, swelling of peri area, belly button, and rectum. Red face with skin itching. Upper thigh swelling and loose stools. I am not sure what the next step is for me. Just feel uncomfortable. Had to put my medication for a MAC infection on hold while on this medication due to interactions. Hoping my MAC does not worsen or aspergillosis get worse.
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Reviewer: Floss5, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
After a bout of pneumonia April 2105, I was later diagnosed with Aspergillosis in June but could not start treatment until July as i was awaiting results of previous Atypical Mycobacterium avium may also have returned. I also have Bronchiectasis. By July it was now invasive aspergillosis and I started vfend orally, double dose initially then one table am and pm for 3 1/2mths. I was told to expect ... Show Full Comment

Comment:
After a bout of pneumonia April 2105, I was later diagnosed with Aspergillosis in June but could not start treatment until July as i was awaiting results of previous Atypical Mycobacterium avium may also have returned. I also have Bronchiectasis. By July it was now invasive aspergillosis and I started vfend orally, double dose initially then one table am and pm for 3 1/2mths. I was told to expect to be on vfend for 6-9mths. Initial side effects, blurred vision 5mins after taking lasting half hour, weight loss (52kg to 44kg), nausea 24/7 (similar to bad morning sickness or a big hangover), loss of appetite, fatigue, weakness and sun sensitivity (I did notice a quick redding of my skin in short exposure to sun light even though I am a long term outdoors person with very olive skin). The vision effects subside over time but we're still evident after taking and driving at night. Other symptoms remain same but you learn to handle or get used to them adjusting what works best for your daily routines and diet. I work full time and eased back in slowly to full days and lessened activities around the home and socially. Also due to my breathing difficulties with two blood clots in the lung, Warfarin treated those. Today mid Oct 2015 my ctscan and VQ scan showed all traces of the aspergillosis had gone and I am allowed to stop the vfend !! Should I be unlucky to get again, in my case probably, given my history and lung damage I would do the same.
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Reviewer: 55-64 Male on Treatment for 1 to 6 months (Patient)

Comment:
My biggest problem has been loss of appetite,lost 15 lbs and went back on feeding tube five months after double lung transplant. It zaps all my energy,stomach churns 24/7, get dizzy getting up, but it's working. I'm doing 200mg twice a day.

Comment:
My biggest problem has been loss of appetite,lost 15 lbs and went back on feeding tube five months after double lung transplant. It zaps all my energy,stomach churns 24/7, get dizzy getting up, but it's working. I'm doing 200mg twice a day.
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Reviewer: Bonnie Louise, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I started this medication May 2012 after two bouts of pneumonia....when it was discovered that i had Aspergillosis. I read the reviews plus the decription of the the medication and was terrified....to date...after 3.5 months of 400mg per day I have had NO side effects other than sun sensitivity. My lungs are improving and hopefully I will be able to stop the drug in a few more months. I had a bo ... Show Full Comment

Comment:
I started this medication May 2012 after two bouts of pneumonia....when it was discovered that i had Aspergillosis. I read the reviews plus the decription of the the medication and was terrified....to date...after 3.5 months of 400mg per day I have had NO side effects other than sun sensitivity. My lungs are improving and hopefully I will be able to stop the drug in a few more months. I had a body scan on August 8, 2012 and no skin cancer or moles have changed. What I will say is this.....the medication is EXPENSIVE (no generic) and had I not had a drug plan I do not know what I would have done....it is $2600.00 per month....ouch
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