Reviewer: GulfwaterLily, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I have been on Xyrem (sodium oxybate) for almost 5 years now. Although it didn't decrease my Excessive Daytime Sleepiness at all (so I still need to take Adderall during the day), it COMPLETELY eliminated my Cataplexy! Before Xyrem, I would suffer several full body attacks each week, often leading to serious head injuries. But ever since the very first night that I took Xyrem, I haven't ha ... Show Full Comment

Comment:
I have been on Xyrem (sodium oxybate) for almost 5 years now. Although it didn't decrease my Excessive Daytime Sleepiness at all (so I still need to take Adderall during the day), it COMPLETELY eliminated my Cataplexy! Before Xyrem, I would suffer several full body attacks each week, often leading to serious head injuries. But ever since the very first night that I took Xyrem, I haven't had a single attack in over 4 years! For this reason alone, Xyrem has been an absolute game changer! Although I still wish that it improved the exhaustion that I feel every day, the fact that it has made my Cataplexy a thing of the past makes it a miracle drug to me.
Hide Full Comment

Reviewer: 65-74 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
I've taken xyrem for norcolepsy-catcplexy it works wonders. I felt almost normal.Be careful taking Xyrem any other meds even OTC meds that effect the central neuor. system,it can cause a real deep depression.so follow Drs. direction. The cost is unreal $2400.00 a month ,as long as I didn't have insurance and was broke the pharmacy co. furnished it for free.When I got on Medicare it cost m ... Show Full Comment

Comment:
I've taken xyrem for norcolepsy-catcplexy it works wonders. I felt almost normal.Be careful taking Xyrem any other meds even OTC meds that effect the central neuor. system,it can cause a real deep depression.so follow Drs. direction. The cost is unreal $2400.00 a month ,as long as I didn't have insurance and was broke the pharmacy co. furnished it for free.When I got on Medicare it cost me $800.00 a month. for two month then my insurance prescription allowance was used up,then it went to $2400.00 a month. so now I can't afford it.
Hide Full Comment

Reviewer: i am a PWN, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I took this med for narcolepsy. I also have fibromyalgia. It gave me 8 solid hours of sleep & I felt great. However, within a week of reaching the full dosage, I had a psychotic episode & was hospitalized. I will never take it again even a reduced amount. Sigh...

Comment:
I took this med for narcolepsy. I also have fibromyalgia. It gave me 8 solid hours of sleep & I felt great. However, within a week of reaching the full dosage, I had a psychotic episode & was hospitalized. I will never take it again even a reduced amount. Sigh...
Hide Full Comment

Reviewer: peggy t., 65-74 Female on Treatment for 1 to 6 months (Patient)

Comment:
developed sleepwalking,in hosp.due to severe fall.now have lost use of r. arm,radial nerve paralysis out look not good. dr.ug worked great except for causing me to sleepwalk.as of right now off med.rethink before use,chek side effects carefully

Comment:
developed sleepwalking,in hosp.due to severe fall.now have lost use of r. arm,radial nerve paralysis out look not good. dr.ug worked great except for causing me to sleepwalk.as of right now off med.rethink before use,chek side effects carefully
Hide Full Comment

Reviewer: marianne, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have fibromyalgia and the fatigue and pain associated with poor sleep. This drug, along with Savella, has alleviated my pain 100%. However, I still have big troubles getting to sleep or staying asleep, so fatigue is still severe. I take 6m per night.

Comment:
I have fibromyalgia and the fatigue and pain associated with poor sleep. This drug, along with Savella, has alleviated my pain 100%. However, I still have big troubles getting to sleep or staying asleep, so fatigue is still severe. I take 6m per night.
Hide Full Comment