Reviewer: Madimcwil , 19-24 on Treatment for 6 months to less than 1 year (Patient)

Comment:
Okay so I have narcolepsy and have been taking this durning I love you with a stimulant. Unfortunately I hated the drug because I am already the perfect weight for. My size and although I eat so much I never gain any weight. Also I pee ALL THE TIME. Literally... I take this medication to help me sleep at night but end up pissing 4 or 5 times a night. Typically twice before bed, once at 2am (second ... Show Full Comment

Comment:
Okay so I have narcolepsy and have been taking this durning I love you with a stimulant. Unfortunately I hated the drug because I am already the perfect weight for. My size and although I eat so much I never gain any weight. Also I pee ALL THE TIME. Literally... I take this medication to help me sleep at night but end up pissing 4 or 5 times a night. Typically twice before bed, once at 2am (second dose), once at 6am and again at 8am, and almost every other hour during the day.. I get a about 6 hrs of good sleep on the drug. Which helps to an extent. My manager wonâ??t let me close the store because I still get sleepy. Whatâ??s crazy is my pee is clear, I drink normal amount of water, but I am still dehydrated! Itâ??s like now the water just passes straight through my body and it doesnâ??t absorb. I get super chap lips and my VAINS bulge. I dont know how I feel about either drug still pissing all the time...... and everyone is dismissing this. my gyno and urologist both said nothing is wrong after multiple tests. The pharmacy said nothing is wrong too! I hate this! I think I was better off with my narcolepsy making me tired off the medication.
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Reviewer: Michellemomof5, 35-44 on Treatment for 1 to 6 months (Patient)

Comment:
So I have been taking xyrem for about 3 months now. Total night and day difference. I am a 37 year old mom of 5. Oldest being 16 and youngest 15 months. I was scared I wouldnâ??t hear the baby. In fact, I do go into a deep sleep for a good 3 hours and automatically wake up for next dose. I do hear the kids which hasnâ??t seem to be a problem. One downfall is the diarrhea. Only side effec ... Show Full Comment

Comment:
So I have been taking xyrem for about 3 months now. Total night and day difference. I am a 37 year old mom of 5. Oldest being 16 and youngest 15 months. I was scared I wouldnâ??t hear the baby. In fact, I do go into a deep sleep for a good 3 hours and automatically wake up for next dose. I do hear the kids which hasnâ??t seem to be a problem. One downfall is the diarrhea. Only side effect I seem to have. If you take xyrem and do not go right to sleep you almost get like a sexual tingle throughout your body. Told doc and he said go to sleep. No one ever tells him these things. But overall during the day I feel like a million bucks. Once in a while I still need a provigil around 3-4pm but overall none. If you miss your second dose I can guarantee you will feel the tired effects. I have had narcolepsy many years and just thought I was worn down from kids feels good to be me again!
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Reviewer: Jaytee, 25-34 on Treatment for 1 to less than 2 years (Patient)

Comment:
I was diagnosed with arcolepsy with cataplexy about two years ago. I used to fall asleep anytime I wasn't doing something that was highly stimulating. I would fall asleep even while talking with someone or drinking coffee. I would sleep 8hrs a night then 3-6 in the day. My jaw would feel very weak and sore if I laughed genuinely or spoke excitedly. I always felt like my brain was in a fog and ... Show Full Comment

Comment:
I was diagnosed with arcolepsy with cataplexy about two years ago. I used to fall asleep anytime I wasn't doing something that was highly stimulating. I would fall asleep even while talking with someone or drinking coffee. I would sleep 8hrs a night then 3-6 in the day. My jaw would feel very weak and sore if I laughed genuinely or spoke excitedly. I always felt like my brain was in a fog and my thinking, memory, and concentration we're shot. I had injurious dream enactkent behaviors and periodic limb movements at night, in addition to sleep walking and talking. Xyrem has resolved all of it and I have had zero side effects. It has changed my life and I hope I can take it for many years to come.
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Reviewer: Sleepysnoozer, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I absolutely love my Xyrem! I'm not going to lie and say it was great from the start because it was awful in the beginning. My body had a very hard time adjusting to it for the first 2 weeks, I was miserable with pretty bad daytime nausea, headaches and fatigue. To this day I still vomit if I don't lay down and go to sleep immediately after taking it at bedtime, it tastes terrible and I al ... Show Full Comment

Comment:
I absolutely love my Xyrem! I'm not going to lie and say it was great from the start because it was awful in the beginning. My body had a very hard time adjusting to it for the first 2 weeks, I was miserable with pretty bad daytime nausea, headaches and fatigue. To this day I still vomit if I don't lay down and go to sleep immediately after taking it at bedtime, it tastes terrible and I always have a dry mouth but that's all worth it. Life with narcolepsy is awful, I was sleeping my life away, literally sleeping like a newborn baby 24 hours a day and never felt rested. I was so desperate for a solid full night of sleep and to actually feel rested upon waking that fighting through those first 2 weeks was so worth it for me. I've been able to discontinue my antidepressant which is great. I don't know for sure if the Xyrem is helping with my depression or if I was just exhibiting the symptoms of depression due to my uncontrolled narcolepsy but either way it's better now. I've also had a significant improvement in my fibromyalgia and chronic back pain since I've been on Xyrem. I am not kidding when I say that this is a miracle drug for me, my physical and mental health have both improved and I hope I never have to go back to that miserable life I had prior to starting it :))
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Reviewer: 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I am a narcoleptic with cataplexy. Without this medication I would lose my job due to sleeping.

Comment:
I am a narcoleptic with cataplexy. Without this medication I would lose my job due to sleeping.
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