Reviewer: Giggi, 65-74 on Treatment for less than 1 month (Patient)

Comment:
I have had many side effects!! Stomach problems muscle soreness overall feeling bad. I just took 3 pills. 100mg. reminds me when I was on chemo when I had breast cancer. It did heal my breakouts but it made me so ill!

Comment:
I have had many side effects!! Stomach problems muscle soreness overall feeling bad. I just took 3 pills. 100mg. reminds me when I was on chemo when I had breast cancer. It did heal my breakouts but it made me so ill!
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Reviewer: Jefferson, 55-64 on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have had Dermetitis Herpetiformis for the past 30 years. I had it about 25 years ago all over my body (except face, neck and hands)I was covered everywhere else. I was like that for over a year and that is when I received my diagnois and starting taking Dapsone. Within a month I starting clearing up and he went away for 20 years. It has started to come back (not quite as bad as 20 years ago) ... Show Full Comment

Comment:
I have had Dermetitis Herpetiformis for the past 30 years. I had it about 25 years ago all over my body (except face, neck and hands)I was covered everywhere else. I was like that for over a year and that is when I received my diagnois and starting taking Dapsone. Within a month I starting clearing up and he went away for 20 years. It has started to come back (not quite as bad as 20 years ago) but I am seeing spot break out on leg and arms. I am back on Dapsone but it is just holding its own. I can't quite get rid of it but it livable.
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Reviewer: Paul, 45-54 Male on Treatment for 10 years or more (Patient)

Comment:
After months of doc visits and blisters and intense itching I was diagnosed with DH 24 years ago. I've been taking half a 100mg tablet of Dapsone for the last 24 yaears. love it. Cannot take NSAID's with it though. DH symptoms get 10 times worse if you take NSAID's. I suffer a drug induced Hyposensitivity with the two.

Comment:
After months of doc visits and blisters and intense itching I was diagnosed with DH 24 years ago. I've been taking half a 100mg tablet of Dapsone for the last 24 yaears. love it. Cannot take NSAID's with it though. DH symptoms get 10 times worse if you take NSAID's. I suffer a drug induced Hyposensitivity with the two.
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Reviewer: s.lettermanyahoo.com, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
dermatitis herpetiformis is what the Dermatoligist said I have caused by celiac. Of course I have had the biopsy, blood work, light down the throat so they could biopsy stomach all said celiac. Don't understand how one becomes allergiac to wheat after 50 yrs. Oh well I have taken Dapsone 100 mg for 5 yrs & I thought it was a wonder drug. I have celiac and am in the 20% that get the blister ... Show Full Comment

Comment:
dermatitis herpetiformis is what the Dermatoligist said I have caused by celiac. Of course I have had the biopsy, blood work, light down the throat so they could biopsy stomach all said celiac. Don't understand how one becomes allergiac to wheat after 50 yrs. Oh well I have taken Dapsone 100 mg for 5 yrs & I thought it was a wonder drug. I have celiac and am in the 20% that get the blisters (elbows,legs,but checks,& eyelids). Now I have been told I have medically induced Lupus which has caused a lung disease because of this drug. I was taken off Dapsone & the blisters came back within 2 days. Started a new drug Sulfasalazine 1000mg twice daily. Just started so don't know if it's going to help will let you know. It will take a long time for the blisters to heal (diabetic also) & I hate the scars they leave. The lung Dr. want do another cat scan for lungs till November as Dr. says I have to be off Dapsone 3 mths to see if it is Dapsone causing the problem but according to them Family Dr. & Lung Specialist it's the only drug I take that can cause the problem. I have checked for this side effect but so far nothing. Help if anybody has went through this as I am a little scared. I now have to sleep wiyh oxygen & use oxygen when I am doing anything as oxygen level drops to low. I am only 53.
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Reviewer: dmacbolts, 19-24 Female on Treatment for less than 1 month (Patient)

Comment:
Received Dapsone 100 mg/daily for DH. Worked great, was getting weekly labs taken no problems. Then about 3-4 weeks into it my neutrophil count dropped. My Dr. had to D/C it due to risk of infection. Now I don't know what to do to control this intense itch! If anyone has used anything else with success please let me know! Thanks Dan

Comment:
Received Dapsone 100 mg/daily for DH. Worked great, was getting weekly labs taken no problems. Then about 3-4 weeks into it my neutrophil count dropped. My Dr. had to D/C it due to risk of infection. Now I don't know what to do to control this intense itch! If anyone has used anything else with success please let me know! Thanks Dan
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