Reviewer: 25-34 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
I Had a pituitary tumor removed which left my pituitary gland unable to produce certain hormones so my endocrinologist put me on the the decadron less than a year ago and I hate it. Weight gain is the biggest part- I gained about 35lb in a few months. Other side effects include emotional instability. And joint pain (knees and ankles) if not taken at the same time each day. It's gotten to t ... Show Full Comment

Comment:
I Had a pituitary tumor removed which left my pituitary gland unable to produce certain hormones so my endocrinologist put me on the the decadron less than a year ago and I hate it. Weight gain is the biggest part- I gained about 35lb in a few months. Other side effects include emotional instability. And joint pain (knees and ankles) if not taken at the same time each day. It's gotten to the point where I've crawled out of bed and not been able to walk for a few hours. And if you drink alcohol the pain is MUCH worse the next day. I know this drug is necessary for for me but I hate thinking that I have to take it for the rest of my life.
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Reviewer: 19-24 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My father has been on this medication for 4 months because of a brain tumor (glioblastoma multi forme). He was started on this after surgery and has tried to be weened off of it 3 times now and each time was unsuccessful. It caused lethargy, confusion, vomitting, head ache, and tremors. This was because the swelling reoccured during the titration process. It has also caused wakefulness, and caused ... Show Full Comment

Comment:
My father has been on this medication for 4 months because of a brain tumor (glioblastoma multi forme). He was started on this after surgery and has tried to be weened off of it 3 times now and each time was unsuccessful. It caused lethargy, confusion, vomitting, head ache, and tremors. This was because the swelling reoccured during the titration process. It has also caused wakefulness, and caused him to be very very very shaky. There are times where his legs just turn into noodles and falls. Another complication with this "falling" is that he loses control of his bladder and urinates involuntarly. This has become a frequent problem and his doctor has put him on Ditropan to help control his bladder. Hopefully this helps.
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Reviewer: jaysam20, 35-44 Female on Treatment for 1 to 6 months (Patient)

Comment:
i got blurry vision, frequent urionation and puffy faco plus abdominal pain.

Comment:
i got blurry vision, frequent urionation and puffy faco plus abdominal pain.
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Reviewer: ROB, 35-44 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
I was diagnosed with a brain tumor(megelablastoma) in Oct.2006, I was 35 yrs.old, immediately started decadron 4mg 2times daily, had a 15 hr surgery for tumor removal 6 days after being diagnosed,I was released from the hospital 5 days following surgery no chemo was needed but I had to have an extended period of radiation, and several weeks of physical therapy resulting in very acceptable results, ... Show Full Comment

Comment:
I was diagnosed with a brain tumor(megelablastoma) in Oct.2006, I was 35 yrs.old, immediately started decadron 4mg 2times daily, had a 15 hr surgery for tumor removal 6 days after being diagnosed,I was released from the hospital 5 days following surgery no chemo was needed but I had to have an extended period of radiation, and several weeks of physical therapy resulting in very acceptable results, BUT, my problem is that I can't get off of the decadron, I have been very slowly and cautiously weened off of the medication 4 times since the surgery but between 6 to 8 days of NO DECADRON the projectile vomiting and horrible stomach turning nausea begins and every time, the nausea and vomiting results in severe weight loss and the doctors after a very short while start me BACK on the medication immediately, and after 3 days it all subsides, I can eat, boy can I eat, no more nausea nor vomiting, but then the mood swings,shortness of patience,irritability etc... begins all over again, it will be 2 yrs. in October 2008 and I am still on the on again/off again rollercoaster ride, I have boy/girl twins that are 6 and a very tired wife who needs for dad to get off and stay off of the medication, I still remain tumor and cancer free thanks to GOD, now I need to become DECADRON FREE !!!
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Reviewer: miracle, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
I had to take decadron to decrease edema in my head, from recurrance of brain tumor. I took it for 4months I came off of the drug slowly. My hands shook so bad and I could'nt hardley walk up stairs and I'am still having difficulty with that.Extreme mood swings,crying,no sleep even taking anxiety pills did'nt help.Oh well hope that my legs and feet and muscle get back to normal again. I ... Show Full Comment

Comment:
I had to take decadron to decrease edema in my head, from recurrance of brain tumor. I took it for 4months I came off of the drug slowly. My hands shook so bad and I could'nt hardley walk up stairs and I'am still having difficulty with that.Extreme mood swings,crying,no sleep even taking anxiety pills did'nt help.Oh well hope that my legs and feet and muscle get back to normal again. It did however relieve my swelling in the brain.
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