Reviewer: Larry, 65-74 Male on Treatment for 1 to less than 2 years (Caregiver)

Comment:
after 1 1/2 years on this drug, my wife started having vision problems..she is now legally blind with just some periphial vision left. After many tests at OHSU it was diagnosed as plaquenil toxicity.

Comment:
after 1 1/2 years on this drug, my wife started having vision problems..she is now legally blind with just some periphial vision left. After many tests at OHSU it was diagnosed as plaquenil toxicity.
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Reviewer: Celeste, 25-34 on Treatment for 1 to 6 months (Patient)

Comment:
Plaquenil is the devil! Worked well 1st 2 mts. After that I had issues with my vision, felt waves of nervousness, and extreme anxiety where I started to question my sanity. Hallucinated, broke out in rashes and crying spells. It was the worst 2 months of these side effects I've ever had in my life! Got off of it and I feel back to normal. My Lupus is mild so I'm going the holistic route. P ... Show Full Comment

Comment:
Plaquenil is the devil! Worked well 1st 2 mts. After that I had issues with my vision, felt waves of nervousness, and extreme anxiety where I started to question my sanity. Hallucinated, broke out in rashes and crying spells. It was the worst 2 months of these side effects I've ever had in my life! Got off of it and I feel back to normal. My Lupus is mild so I'm going the holistic route. Plant based diet, acupuncture, juicing.. I feel good and will take minor aches and fatigue any day than being on plaquenil. Beware! Do your research before accepting a lab created Rx from Dr.s.
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Reviewer: 45-54 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
Please please please don't be intimidated by the Internet stories of problems or side effects. This drug saved my life! Yes, there are some GI issues in the first few weeks and you need to be patient. I had life threatening issues that sent me to the ER - twice - and each time, Plaquenil brought me back from the brink and set me on an even keel. Please be patient and try to tough out the GI is ... Show Full Comment

Comment:
Please please please don't be intimidated by the Internet stories of problems or side effects. This drug saved my life! Yes, there are some GI issues in the first few weeks and you need to be patient. I had life threatening issues that sent me to the ER - twice - and each time, Plaquenil brought me back from the brink and set me on an even keel. Please be patient and try to tough out the GI issues and give it 2-3 months. This drug can save your life if you give it a chance.
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Reviewer: EnGee, 35-44 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
My rhematologist placed me on plaquenil in winter of 2015 after experiencing a flare (40% of my hair fell out in 5 weeks and I was ALWAYS exhausted. Even if I slept it was unbearable). I've been on it a year, reluctantly. I do not want to have to be maintained on any chemicals or pills. Now that I've been on it a year the only thing that has improved is fatigue. But I"m not sure if it ... Show Full Comment

Comment:
My rhematologist placed me on plaquenil in winter of 2015 after experiencing a flare (40% of my hair fell out in 5 weeks and I was ALWAYS exhausted. Even if I slept it was unbearable). I've been on it a year, reluctantly. I do not want to have to be maintained on any chemicals or pills. Now that I've been on it a year the only thing that has improved is fatigue. But I"m not sure if it's because the flare passed or because of plaquenil. I still get joint, muscle and back pain so to me it hasn't improved the pain part of it.
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Reviewer: RK, 55-64 Male on Treatment for 1 to 6 months (Patient)

Comment:
Have been on this medication for 5 weeks. I believe it has reduced the severity of my symptoms by about half. I am concerned about the eye issues, but will keep a close watch going forward.

Comment:
Have been on this medication for 5 weeks. I believe it has reduced the severity of my symptoms by about half. I am concerned about the eye issues, but will keep a close watch going forward.
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