Reviewer: Theaoneandonly, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Initially treated with radiation & steroids, been on Velcade for 7 months. Mild nausea initially, some constipation, worst side effect for me has been lethargy. My numbers are in normal ranges, being transplanted next month. Had no neuropathy, no hair loss, mild appetite suppression but no weight loss. Can "taste" smell of medication days after treatment... but I can tolerate that. E ... Show Full Comment

Comment:
Initially treated with radiation & steroids, been on Velcade for 7 months. Mild nausea initially, some constipation, worst side effect for me has been lethargy. My numbers are in normal ranges, being transplanted next month. Had no neuropathy, no hair loss, mild appetite suppression but no weight loss. Can "taste" smell of medication days after treatment... but I can tolerate that. Experiencing "dry" eyes, facial hair, and acne, but doctor says that they most likely from steroids. I am very pleased with my results & treatment.
Hide Full Comment

Reviewer: DAVE , 65-74 Male on Treatment for 1 to 6 months (Patient)

Comment:
After being on Revlimid, it was determined that Velcade would do a better job in getting my numbers down to a proper level for a stem cell transplant (autologous). Within 2 cycles I was ready. I had the transplant and within 4 months I was classified as CR (complete response). It will be 2 years in May 2010 and my numbers are still good. The only side effect of the medication is peripheral neuropa ... Show Full Comment

Comment:
After being on Revlimid, it was determined that Velcade would do a better job in getting my numbers down to a proper level for a stem cell transplant (autologous). Within 2 cycles I was ready. I had the transplant and within 4 months I was classified as CR (complete response). It will be 2 years in May 2010 and my numbers are still good. The only side effect of the medication is peripheral neuropathy. Although pretty bothersome, it is better than the alternative. I am aware that there is no cure for MM but thankfully there are drugs out there to help us survive.
Hide Full Comment

Reviewer: Susan Dorffi, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have had MM for five years with no symptoms other than a bloodclot. Velcade has knocked my protein levels down to normal with 6 treatments.Excruciating neuopathy in legs discontinued treatment. I am taking Lyrica which knocked out the neuropathy completely.

Comment:
I have had MM for five years with no symptoms other than a bloodclot. Velcade has knocked my protein levels down to normal with 6 treatments.Excruciating neuopathy in legs discontinued treatment. I am taking Lyrica which knocked out the neuropathy completely.
Hide Full Comment

Reviewer: ohiomom, 55-64 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was scheduled to have eight rounds of four injections each. After only four rounds, I was in remission! However, I did develop neuropothy in my feet, experienced vomiting and diarrhea, chills and weakness. It was not easy, but I would do it again, as I have been in remission for six years.

Comment:
I was scheduled to have eight rounds of four injections each. After only four rounds, I was in remission! However, I did develop neuropothy in my feet, experienced vomiting and diarrhea, chills and weakness. It was not easy, but I would do it again, as I have been in remission for six years.
Hide Full Comment

Reviewer: ljbisbee, 65-74 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I began chemotherapy soon afterwards but I don't think with Velcade. I went to the Memorial Sloan-Kettering Cancer Center in the summer of 2008 to have extensive chemo in preparation for a stem cell transplant which she had soon afterward. When I returned to Florida, where we live, in early September 2008 my oncologist put me on Velcade. So far, so good. Even though I have side effects suc ... Show Full Comment

Comment:
I began chemotherapy soon afterwards but I don't think with Velcade. I went to the Memorial Sloan-Kettering Cancer Center in the summer of 2008 to have extensive chemo in preparation for a stem cell transplant which she had soon afterward. When I returned to Florida, where we live, in early September 2008 my oncologist put me on Velcade. So far, so good. Even though I have side effects such as nausea and fatigue I seem to handle my treatments OK. Some of the best places for treatment for are in Florida, they are the Cleveland Clinic in Weston, Florida, the Mayo Clinic also in Florida and of course, Sloan-Kettering in New York.
Hide Full Comment