Reviewer: 55-64 on Treatment for 1 to 6 months (Patient)

Comment:
Third try at kicking this disease. First was a stem cell transplant that lasted almost 3 years. Round 2 was Oral chemo with Dexamethazone and Lenalidomide, good for another 3 years. The numbers started creeping back up and now were on to the Borteximib with Cyclophosphamide and Dexamethazone. Just finished cycle 5 of 8. 4 weeks of weekly injections and then 1 week off. The oral drugs don't tak ... Show Full Comment

Comment:
Third try at kicking this disease. First was a stem cell transplant that lasted almost 3 years. Round 2 was Oral chemo with Dexamethazone and Lenalidomide, good for another 3 years. The numbers started creeping back up and now were on to the Borteximib with Cyclophosphamide and Dexamethazone. Just finished cycle 5 of 8. 4 weeks of weekly injections and then 1 week off. The oral drugs don't take the week off. Fantastic results right out of the gate after 2 cycles I was in normal light chain range again. The injections are easy to handle, although the area is getting a little irritated in general. Now that being said, I'm a fairly substantial target at 240 lbs, so they jam a lot of that stuff into me every week. The biggest side effect I'm experiencing is a lack of energy. Also finding over the last week or two that I'm beginning to lose my breath more quickly. Might6 be a bug, but I'm going to talk to the oncologist about it next week. The energy drop has been a steady decline since treatment started and I used to recover within a few days of injection, but it is getting more prolonged and more severe also. I may have to take some time off work in the end, but I'm committed to killing as much of this crap as I can, so going to tough it out as long as possible. The drugs are doing their part now so I'm going to help it out with a good attitude and kick this disease in the ass!
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Reviewer: Hawkeye, 65-74 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
Diagnosed, after the collapse of 2 vertebra L6 & L12 resulted in the lose of 3 in. of height, plus an estimated 75% kidney function loss, in March 2012 with Stage 3 MM. After three weeks of intensive chemo treatments (Velcade + steroids) in the hospital. During that time I lost 50 of my previous 170 lbs, I was released when the doctors finale realized the hospitalization was killing me faste ... Show Full Comment

Comment:
Diagnosed, after the collapse of 2 vertebra L6 & L12 resulted in the lose of 3 in. of height, plus an estimated 75% kidney function loss, in March 2012 with Stage 3 MM. After three weeks of intensive chemo treatments (Velcade + steroids) in the hospital. During that time I lost 50 of my previous 170 lbs, I was released when the doctors finale realized the hospitalization was killing me faster then the MM could left untreated. After release I was put on a bi-weekly treatment regime of bortezomib and panobinostat until Oct. That's when it was determined I has recovered sufficiently to survive a Stem-cell reinfusion. Completed during x-mass week 2012 and followed since by bi-weekly chemo of Velcade injections. The list of side-effects ranging from extensive excessive to no bowel activity. Swelling of the feet and ankles plus a rash from waist down I would have swore was the result of being attached by Fire Ants. Seeking any form of relief that may help, I started using the oriental detox foot patches that seemed to change the course of the problem within a few weeks. Physiological or not ?? and I don't care, something worked to stop the terrible burning and itching that nearly drove me mad plus nearly destroying any hope of sleep, for months. Now, post resent biopsy (Feb. 2015), we have discovered the Velcade is losing effectiveness as the MM is on the rise again. New war plan is called for which I will summit with my doctors on this week. Keep the faith and remember my old fall back position, no one gets out alive. In the interim, every day's a good day and a new adventure.
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Reviewer: Blessed, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I ave taken velcade for 2 years since 2011. It has been very effective and I have had very little side effects. My numbers are very good since being on velcade. For me, the outcome over weighs the side effects. I am been fortunate and extremely bless to have little to no pain. I have never taken pain medications, not even a tylenol. Praise the Lord.

Comment:
I ave taken velcade for 2 years since 2011. It has been very effective and I have had very little side effects. My numbers are very good since being on velcade. For me, the outcome over weighs the side effects. I am been fortunate and extremely bless to have little to no pain. I have never taken pain medications, not even a tylenol. Praise the Lord.
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Reviewer: Richard, 45-54 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
You have to be satisfied with being in remission, but the neuropathy in my feet really makes me question whether or not I should have gone the transplant route. I just found out the Velcade has damaged the nerves in my stomach where I can’t digest food correctly. Make sure you are up front and honest with you Doctor about the pain. DO NOT assume the pain is supposed to be that bad.

Comment:
You have to be satisfied with being in remission, but the neuropathy in my feet really makes me question whether or not I should have gone the transplant route. I just found out the Velcade has damaged the nerves in my stomach where I can’t digest food correctly. Make sure you are up front and honest with you Doctor about the pain. DO NOT assume the pain is supposed to be that bad.
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Reviewer: CINED, 65-74 Female on Treatment for 1 to 6 months (Patient)

Comment:
SIDE EFFECTS SUCH AS LEG PAIN OTHERWISE SEEMS TO BE WORKING VERY WELL

Comment:
SIDE EFFECTS SUCH AS LEG PAIN OTHERWISE SEEMS TO BE WORKING VERY WELL
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