Reviewer: Ani Phillips, 65-74 on Treatment for 1 to less than 2 years

Comment:
I have ET bone cancer and have taken this drug for a year, beginning with 1000 mg. per day to now 500 mg./day plus 2 extra doses per week. While it has been highly effective at lowering my platelets to a normal range, it has also lowered my red blood cell counts below normal, and I have EXTREME fatigue bouts almost daily. The fatigue comes on suddenly and I am completely immobilized! Lasts only ar ... Show Full Comment

Comment:
I have ET bone cancer and have taken this drug for a year, beginning with 1000 mg. per day to now 500 mg./day plus 2 extra doses per week. While it has been highly effective at lowering my platelets to a normal range, it has also lowered my red blood cell counts below normal, and I have EXTREME fatigue bouts almost daily. The fatigue comes on suddenly and I am completely immobilized! Lasts only around 30 minutes to an hour, but very concerning. I realize I have no choice but to continue treatment to prevent strokes, but worry about longer term side effects.
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Reviewer: Hydroxyurea, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
Taking for five months for high platelet count 800,000. Has lowered to 500. Loose bowels and maybe kidney pain. Unsure of my medical state at this time.

Comment:
Taking for five months for high platelet count 800,000. Has lowered to 500. Loose bowels and maybe kidney pain. Unsure of my medical state at this time.
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Reviewer: Mizz, 55-64 Female on Treatment for 10 years or more (Patient)

Comment:
I was diagnosed with Polycythemia Vera in 1985. I've been taking Hydroxyurea in the brand name or generic (it fluctuates as to which) 500 MG once a day for all these years. At the very start I was offered phlebotomy or this... I chose this. It has extended my life expectancy by many years. It makes me a little nauseated right after I take it and it effects my balance. My hair is getting very ... Show Full Comment

Comment:
I was diagnosed with Polycythemia Vera in 1985. I've been taking Hydroxyurea in the brand name or generic (it fluctuates as to which) 500 MG once a day for all these years. At the very start I was offered phlebotomy or this... I chose this. It has extended my life expectancy by many years. It makes me a little nauseated right after I take it and it effects my balance. My hair is getting very thin now, but the alternative is worse. This gave me more time on earth with my children and I'm grateful for that.
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Reviewer: Lori, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I have ET. Been on this medication for about 5 years and I hate taking it. Now my blood counts are messed up and I know this drug has caused it. My doctor lowered my dosage but I'm not very confident in him. Time to get a new doctor

Comment:
I have ET. Been on this medication for about 5 years and I hate taking it. Now my blood counts are messed up and I know this drug has caused it. My doctor lowered my dosage but I'm not very confident in him. Time to get a new doctor
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Reviewer: 75 or over Male on Treatment for 2 to less than 5 years (Patient)

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