Reviewer: MaggieMae, 65-74 Female on Treatment for 1 to 6 months (Patient)

Comment:
Found 2mm spot on brain after stage 4 breast cancer. Was taking Herceptin but would not penetrate brain barrier. Started with higher doses of Tykerb & Xeloda but put me in hospital 7 days with severe diarrhea. Lowered doses - Tykerb 2 500mg once day-21 days on 7 days off. Xeloda 250mg twice day-14 days on 7 days off. Hands and feet red but can tolerate. Last 2 MRIs were good.

Comment:
Found 2mm spot on brain after stage 4 breast cancer. Was taking Herceptin but would not penetrate brain barrier. Started with higher doses of Tykerb & Xeloda but put me in hospital 7 days with severe diarrhea. Lowered doses - Tykerb 2 500mg once day-21 days on 7 days off. Xeloda 250mg twice day-14 days on 7 days off. Hands and feet red but can tolerate. Last 2 MRIs were good.
Hide Full Comment

Reviewer: Caroline, 65-74 on Treatment for 1 to 6 months (Patient)

Comment:
I have been on XELODA for 3 mon. after being on faslodex injections and xgeva for bone strength. I was treated in 2000 for stage 2 HER positive. It came back in my spine and now in my bone marrow. The doc is pleased with the XELODA, but I am concerned because my red blood cell count stays low because of cancer cells in my marrow and because XELODA also destroys red blood cells. Overall, I still ha ... Show Full Comment

Comment:
I have been on XELODA for 3 mon. after being on faslodex injections and xgeva for bone strength. I was treated in 2000 for stage 2 HER positive. It came back in my spine and now in my bone marrow. The doc is pleased with the XELODA, but I am concerned because my red blood cell count stays low because of cancer cells in my marrow and because XELODA also destroys red blood cells. Overall, I still have good quality of life . The hand/foot syndrome is troublesome, but I am managing with lots of coconut oil all day. I go to warm water therapy and PT to battle fatigue, bone pain, and muscle weakness. Gabapentin for neuropathy, Advil and oxycode for pain, and senecot for constipation are my major drugs/helpers. I am 65 years old and I pray that I am blessed with many years of productive living where I can love and care for for my family and friends and give back to the students I tutor as long as I so shall live. I am constantly reading about new treatments. The comments and reviews on this site have been very comforting to me. Please everyone, keep sharing your experience with this drug. Also, I am one patient who experienced very little nausea or diarrhea. All of the pain mess I use cause constipation, maybe that is why! Oh, I have had many blood transfusions because of the cancer cells in my bone marrow and because of the effects of the XELODA . I know the docs can't keep doing that so I worry about what is next for me. To all patients, keep studying and praying and sharing.
Hide Full Comment

Reviewer: 45-54 on Treatment for 1 to less than 2 years (Patient)

Comment:
After two cycles, the Hand/Foot Syndrome began, mostly to feet. I have been on this drug a little more than a year. I have lost two toenails and it does cause some nail fungal stuff over a longer period of time. I haven't experienced nausea/vomiting but do feel very tired at the end of the cycle. Skin gets very dry. Cool water/aloe on feet/palms helps. Get comfy shoes and moisturizer oft ... Show Full Comment

Comment:
After two cycles, the Hand/Foot Syndrome began, mostly to feet. I have been on this drug a little more than a year. I have lost two toenails and it does cause some nail fungal stuff over a longer period of time. I haven't experienced nausea/vomiting but do feel very tired at the end of the cycle. Skin gets very dry. Cool water/aloe on feet/palms helps. Get comfy shoes and moisturizer often. Also, take a Calcium/magnesium and drink lots of fluids as it can cause an electrolyte imbalance.
Hide Full Comment

Reviewer: Stella, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
I had breast cancer in 2000 which had spread to my spine in one of my vertebrae. I was prescribed Xeloda by my oncologist. Despite the severe side effects of hands and feet going red, blisters in my mouth and skin disorders, the oncologist insisted on this drug. I decided to terminate the use within 11 weeks. I am now experiencing numbness in both my hands, swelling and stiffness in all the joints ... Show Full Comment

Comment:
I had breast cancer in 2000 which had spread to my spine in one of my vertebrae. I was prescribed Xeloda by my oncologist. Despite the severe side effects of hands and feet going red, blisters in my mouth and skin disorders, the oncologist insisted on this drug. I decided to terminate the use within 11 weeks. I am now experiencing numbness in both my hands, swelling and stiffness in all the joints of my hands. I believe patients should be warned about these side effects so that they understand the risks involved in taking such severe treatments. These side effects may take six months or even a year to appear.
Hide Full Comment

Reviewer: 65-74 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
Misdiagnosed as "cured" after mastectomy 8-2011. I had no chemo or radiation. Cancer came back in neck lymph node and under arm in mastectomy side. I was put on Xeloda in July 2013 and have been on 2000/day 2 weeks on, 1 off since. Neck lymph node gone, and other tumors drastically decreased. I want to let all on Xeloda with hand/foot syndrome with bleeding sores on feet to try/use T ... Show Full Comment

Comment:
Misdiagnosed as "cured" after mastectomy 8-2011. I had no chemo or radiation. Cancer came back in neck lymph node and under arm in mastectomy side. I was put on Xeloda in July 2013 and have been on 2000/day 2 weeks on, 1 off since. Neck lymph node gone, and other tumors drastically decreased. I want to let all on Xeloda with hand/foot syndrome with bleeding sores on feet to try/use Tegaderm or same product by another company. I suffered over a year with traditional bandaging with little luck. A friend told me about this in December last year and currently all sores are healed. Ask your doctor about this..mine hadn't thought of this use. I have No connection with the company..it just works!
Hide Full Comment