Reviewer: I just wanna feel OK, 45-54 on Treatment for 10 years or more (Patient)

Comment:
Ever since the pharmacy made me switch from powder to liquid I have a difficult time doing anything. I have gone from mobility to exhaustion. I can not breath any better after my infusion.

Comment:
Ever since the pharmacy made me switch from powder to liquid I have a difficult time doing anything. I have gone from mobility to exhaustion. I can not breath any better after my infusion.
Hide Full Comment

Reviewer: 65-74 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
Was started on this treatment late in the formation of symptoms. Dr. first had me take it 1 time per month and then every 2 weeks. As of the last month I have gone to once a week and am hoping for a much better control.

Comment:
Was started on this treatment late in the formation of symptoms. Dr. first had me take it 1 time per month and then every 2 weeks. As of the last month I have gone to once a week and am hoping for a much better control.
Hide Full Comment

Reviewer: tattoocindy, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
In have emphysema and I am 50. Theophelline gives me the shakes so I have to take Xanax and clonopin.Anyone use a different med? I talk 200mg 3 times a day and 10mg of steroids,once during the am and then at bed. Haven't gained a pound,cannot eat too muck because it depresses my diaphragm.

Comment:
In have emphysema and I am 50. Theophelline gives me the shakes so I have to take Xanax and clonopin.Anyone use a different med? I talk 200mg 3 times a day and 10mg of steroids,once during the am and then at bed. Haven't gained a pound,cannot eat too muck because it depresses my diaphragm.
Hide Full Comment

Reviewer: kauaimama, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I have been receiving weekly infusions since 1999 and my PFTs have remained stable with the last one showing a slightly improved condition. Anyone with Alpha 1 should be on this on another proteinese inhibitor. It slows the progression and not on it, the deterioration happens rapidly.

Comment:
I have been receiving weekly infusions since 1999 and my PFTs have remained stable with the last one showing a slightly improved condition. Anyone with Alpha 1 should be on this on another proteinese inhibitor. It slows the progression and not on it, the deterioration happens rapidly.
Hide Full Comment

Reviewer: nobucks, 55-64 Male on Treatment for 10 years or more (Patient)

Comment:
I was diagnosed in 1991 with A1AD and started weekly infusions May of 1992. This augmentation therapy has been a life saver for me. When diagnosed I was told that the disease had progressed so rapidly that I had approximately four years to live. Well, I’m still here and my PFT’s have dropped somewhat, but nothing like they were prior to infusions. Thank God I had a knowledgeable physician.

Comment:
I was diagnosed in 1991 with A1AD and started weekly infusions May of 1992. This augmentation therapy has been a life saver for me. When diagnosed I was told that the disease had progressed so rapidly that I had approximately four years to live. Well, I’m still here and my PFT’s have dropped somewhat, but nothing like they were prior to infusions. Thank God I had a knowledgeable physician.
Hide Full Comment