Reviewer: pad, 65-74 on Treatment for 2 to less than 5 years (Patient)

Comment:
The pain relief was very good but the side effects were unbearable. My gait was severely affected, loss of memory, paranoia, severe tremors, music in head, renal problems, complete loss of appetite, irritable, could not concentrate, blurred vision, severe pain in limbs. I had to quit driving because of disorientation to time and place. I had Prialt removed in April and it took about a month to ... Show Full Comment

Comment:
The pain relief was very good but the side effects were unbearable. My gait was severely affected, loss of memory, paranoia, severe tremors, music in head, renal problems, complete loss of appetite, irritable, could not concentrate, blurred vision, severe pain in limbs. I had to quit driving because of disorientation to time and place. I had Prialt removed in April and it took about a month to begin to feel the side effects subsiding; although, I still feeling lingering side effects. At first no one believed me. I still don't know how the symptoms spread but I do know, no relief is worth losing your mental capacity. Go slowly and be careful.
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Reviewer: 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
I've been on Prialt for about 6 years. I've had no side effects that I can think of. I broke my lower spine and upper spine in several places during military career and my pain was horrible and ultimately ended my career, however Prialt made all the difference for me. I'm able to be a somewhat active dad and no longer take narcotics. I took narcotics for about 4 years before have a Med ... Show Full Comment

Comment:
I've been on Prialt for about 6 years. I've had no side effects that I can think of. I broke my lower spine and upper spine in several places during military career and my pain was horrible and ultimately ended my career, however Prialt made all the difference for me. I'm able to be a somewhat active dad and no longer take narcotics. I took narcotics for about 4 years before have a Medtronic synchromed II placed. I am on my 3rd pump and have no complaints about Prialt. Only that it's a serious game changer.
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Reviewer: Scotto , 45-54 Male on Treatment for less than 1 month (Patient)

Comment:
For the first time in 20 years my pain is nearly gone. I am shocked how well it's working. The only bad part is it seems to make it harder to breathe(I have emphysema). I took it for severe chronic pain after multiple lower back & hip surgeries. Decades on oral narcotics never have this relief.

Comment:
For the first time in 20 years my pain is nearly gone. I am shocked how well it's working. The only bad part is it seems to make it harder to breathe(I have emphysema). I took it for severe chronic pain after multiple lower back & hip surgeries. Decades on oral narcotics never have this relief.
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Reviewer: Roxanne, 65-74 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
This has been a positive treatment, and because of the way it is working, I have been able to NOT be taking 'drugs' for the pain. (I was taking way to much narcotic medication, but only as prescribed.... and my system became toxic.) I have had one pump replacement after 6-7 years, and now about half way through the second. I cannot say it was easy, but much easier than before. I canno ... Show Full Comment

Comment:
This has been a positive treatment, and because of the way it is working, I have been able to NOT be taking 'drugs' for the pain. (I was taking way to much narcotic medication, but only as prescribed.... and my system became toxic.) I have had one pump replacement after 6-7 years, and now about half way through the second. I cannot say it was easy, but much easier than before. I cannot say it was painless, because regulating the amount of Prialt took some real time. Now I really want to know if some of my other problems could have anything to do to Prialt. Like stones, or elevated WBC.
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Reviewer: 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
Because intrathecally infused morphine has caused severe chronic lymphoedaema, the doctor was slowly decreasing the morphine and increasing the Prialt, so it took several months for the side effects of Prialt to become so pronounced as to be obvious ~ also because those side effects were compromising my critical thinking ability to assess the degree of the side effects. The side effects were a ... Show Full Comment

Comment:
Because intrathecally infused morphine has caused severe chronic lymphoedaema, the doctor was slowly decreasing the morphine and increasing the Prialt, so it took several months for the side effects of Prialt to become so pronounced as to be obvious ~ also because those side effects were compromising my critical thinking ability to assess the degree of the side effects. The side effects were an increasing memory deficit, and what became rather severe narcolepsy. I was sleeping 18 hours or more/day, I would fall asleep while performing functions... while brushing my teeth, thankfully the feeling of my legs giving way and the clatter of the toothbrush hitting the sink would wake me in time to keep from falling completely to the floor. Because if I fall asleep in my chair it is painful for my back/legs, once when I could tell it was coming on, and without thinking I made for the stairs to get up to my bed before it hit . . . but I did not make it and fell asleep, thankfully falling forward onto the stairs. If I'd been going downstairs when it hit, I would have fallen down the stairs. Even trying the stairs shows the level of impaired judgment. I was afraid to drive, could not track medication dosing for my elderly mother, could not remember day of the week and kept missing appointments. Clearly I was not functioning, the Prialt had to go. Thankfully, within a few days of the next pump refill without Prialt, the side effects began to decrease. I had hope that the side effects would fade altogether, but now a year afterward, I still have a moderate form of narcolepsy, and my memory/critical thinking have never completely returned to normal. I can at least function now, but I am still apparently permanently impaired by the Prialt.
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