Reviewer: TIMO34135, 65-74 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
First diagnosed with MM in October 2008. Moved to FL and began Rx treatment in December 2008. I completed two cycles of Revlimid (25mg) and Dex (40mg at 10x4mg) before stopping all drugs three weeks before going to UAMS L'Rock, AR for stem cell harvesting in April 2009. Took no drugs from May 2009-Oct 2009 when at that time I had a tandem stem cell transplant procedure at UAMS. As a follow-u ... Show Full Comment

Comment:
First diagnosed with MM in October 2008. Moved to FL and began Rx treatment in December 2008. I completed two cycles of Revlimid (25mg) and Dex (40mg at 10x4mg) before stopping all drugs three weeks before going to UAMS L'Rock, AR for stem cell harvesting in April 2009. Took no drugs from May 2009-Oct 2009 when at that time I had a tandem stem cell transplant procedure at UAMS. As a follow-up to my stem cell transplants, I as put on a daily (every day, w/no days off) regiment of Revlimid 15mg as a maintenance drug and have been on it daily, ever since. I have had minimal side effects: occasional feeling of being extra tired, infrequent muscle twitching (leg), some muscle cramps (usually resolved w/a Potassium supplement). The daily Rev seems to be working, but the financial cost is huge! My annual out of pocket cost, even with Rx insurance, will be in the neighborhood of 12,000 USD. In the scheme of things, I suppose it is a small price to pay for another year of life. Still, I would like to see the cost of Revlimid reduced significantly, not only for me, but more so for others who have less of an ability to pay and need to take Revlimid for their MM.
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Reviewer: gja2414@aol.com, 65-74 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
IT HAS BEEN SATISFACTORY, SHOWING IMPROVEMENT WITH ILLNESS. BLOOD WORK IMPROVING AND PROTEIN LEVELS GOING DOWN. 70 YEAR OLD MALE DIAGNOSED MAY 2009, STARTED WITH RADATION AND THEN VELCADE. 15 MG REVALIMID 21DAYS 7DAYS OFF. SOME SWELLING OF FEET, BUT MUCH IMPROVED SINCE STARTING REVALIMID. HAVE BEEN TAKING FOR APPROXIMATELY 5 MOS,

Comment:
IT HAS BEEN SATISFACTORY, SHOWING IMPROVEMENT WITH ILLNESS. BLOOD WORK IMPROVING AND PROTEIN LEVELS GOING DOWN. 70 YEAR OLD MALE DIAGNOSED MAY 2009, STARTED WITH RADATION AND THEN VELCADE. 15 MG REVALIMID 21DAYS 7DAYS OFF. SOME SWELLING OF FEET, BUT MUCH IMPROVED SINCE STARTING REVALIMID. HAVE BEEN TAKING FOR APPROXIMATELY 5 MOS,
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Reviewer: mcgahey, 55-64 Female on Treatment for less than 1 month (Caregiver)

Comment:
My 62 yr old mother found out the bad news on 06/011/10 and is in stage 3, and has been taking Revlimid for about 2 weeks (21/7). She complains of no side effects. She remains in constant pain in her back and stays in bed most days. For the longest time, her family dr. kept telling her that her back pain was due to back spasms. A year later, at the University Hospital, she is in stage 3 Multi ... Show Full Comment

Comment:
My 62 yr old mother found out the bad news on 06/011/10 and is in stage 3, and has been taking Revlimid for about 2 weeks (21/7). She complains of no side effects. She remains in constant pain in her back and stays in bed most days. For the longest time, her family dr. kept telling her that her back pain was due to back spasms. A year later, at the University Hospital, she is in stage 3 Multiple Myeloma. I have read all the posts on here and my heart goes out to those who have lost your loved ones, and say God is Great to those who are well....I hope my mother pulls through this as well. But its all in God's Hands now....
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Reviewer: marion.bouley79@gmail.com, 75 or over Female (Caregiver)

Comment:
My husband is having a problem with loss of balance and also experiencing signs of dimentia (not serious), but more often as time goes on. This is his second time of taking Revlimid.

Comment:
My husband is having a problem with loss of balance and also experiencing signs of dimentia (not serious), but more often as time goes on. This is his second time of taking Revlimid.
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Reviewer: 45-54 Female on Treatment for less than 1 month (Caregiver)

Comment:
My sister age 47 was diagnosed with multiple myeloma. Found early by random blood test. She had no symptoms except elevated plasma cells. Two full body scans nothing there. She had been on the drug for 19 days when she had a blood clot go into her lung and she died instantly. Acute pulmonary embolus was the official cause of death which is one of the main complications of this drug. I pray this ... Show Full Comment

Comment:
My sister age 47 was diagnosed with multiple myeloma. Found early by random blood test. She had no symptoms except elevated plasma cells. Two full body scans nothing there. She had been on the drug for 19 days when she had a blood clot go into her lung and she died instantly. Acute pulmonary embolus was the official cause of death which is one of the main complications of this drug. I pray this helps someone.
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