Reviewer: hemi dog, 55-64 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
Like mustangRZ I too have been taking Sutent for two years. I started taking 50mg, but like so many others, I had horrible side effects. My doctor kept a close eye on the effects and decided to change the dose to 35.5 mg. I still get side effects, but not so severe. I take 1 pill a day for 28 days then off for 14 days. I still work every day and for the most part feel pretty darn good.

Comment:
Like mustangRZ I too have been taking Sutent for two years. I started taking 50mg, but like so many others, I had horrible side effects. My doctor kept a close eye on the effects and decided to change the dose to 35.5 mg. I still get side effects, but not so severe. I take 1 pill a day for 28 days then off for 14 days. I still work every day and for the most part feel pretty darn good.
Hide Full Comment

Reviewer: Shotgun, 65-74 Male on Treatment for less than 1 month (Patient)

Comment:
I was diagnosed 6/17/09 with Stage 4 metastasized renal cell carcinoma that manifested in my right lung. I started Sutent 50 mg on July 3rd. Had to discontiue on July 20th due to having ALL the side effects. I was prepared for one or two, but not all of them piling on between the 2nd and 3rd week. Just as they all piled on, my wife fell and shattered her knee cap and broke her wrist. She was in t ... Show Full Comment

Comment:
I was diagnosed 6/17/09 with Stage 4 metastasized renal cell carcinoma that manifested in my right lung. I started Sutent 50 mg on July 3rd. Had to discontiue on July 20th due to having ALL the side effects. I was prepared for one or two, but not all of them piling on between the 2nd and 3rd week. Just as they all piled on, my wife fell and shattered her knee cap and broke her wrist. She was in the hospital recovering from the surgery and I was home too sick with Sutent side effects to go see her in the hospital. I had the sore mouth, bleeding gums, a huge ulcer formed on my tongue, incredible nausea that exceeded the nausea drug's ability, fever approaching 102, painful swallowing, extreme fatigue, more than normal shortness of breath (I also have CHF & COPD which produce shortness), diarrhea, sore and stiff neck and back, blood pressure dropped as low as 69/35 (nearly called an ambulance, but it came back up some). I quit the Sutent. After a month off of it, I'm normal again and have restarted this week at 2 12.5 Sutent per day. In 2 weeks we will increase to 3 per day and finally 4 per day in hopes to avoid the side effects. No cat scans yet so I haven't a clue if it's actually working yet.
Hide Full Comment

Reviewer: pookie, 55-64 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
I am a caregiver of a stage 4 Renal Cell Carcinoma patient which has spread to his pelvis, bones, lymph nodes, lungs, and more. His doctor recommended Sutent. She gave him 1 year or less to live. He was on Sutent for a total of 5 weeks. Two weeks on and then off because of complications the Sutent caused. In and out of the hospital we were with 2 operations because of the affect that Sutent had ... Show Full Comment

Comment:
I am a caregiver of a stage 4 Renal Cell Carcinoma patient which has spread to his pelvis, bones, lymph nodes, lungs, and more. His doctor recommended Sutent. She gave him 1 year or less to live. He was on Sutent for a total of 5 weeks. Two weeks on and then off because of complications the Sutent caused. In and out of the hospital we were with 2 operations because of the affect that Sutent had on other functions. Sutent was killing him faster than the cancer. He stated that his insides felt as though they were disolving. Sutent made his sugar level rise to nearly 200 which made for an emergency trip to the hospital which was a nightmare. Sutent gave him gout in both feet. The exhaustion and lack of appetite was overwhelming. He lost 10 pounds in four days. He could not taste most food and what food he could taste was horrific tasting. Smells made him ill. His quality of life was far worse on it than not being on it. Since going off the Sutent he has gained 16 pounds, eats like a lumberjack, has planted a 70' x 30' garden, a 40' wildflower garden and is taking supplements and poly-mva. He has stopped eating meat and cut out all sugar. He looks great and is regaining his muscle back. We have taken the Holistic way of health which includes mind, body and spirit. It is eight months later and we are convinced that if he had stayed on the Sutent he would not be with us today. Perhaps you should restrict your useage of Sutent on further testing of labratory animals.
Hide Full Comment

Reviewer: Calibarb, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Started 1/09. I went on a cruise end of May and waited an extra week to start and have had nothing but trouble since. I now have a perianal dermatitis. They lanced the abscess and now I think it's infected.

Comment:
Started 1/09. I went on a cruise end of May and waited an extra week to start and have had nothing but trouble since. I now have a perianal dermatitis. They lanced the abscess and now I think it's infected.
Hide Full Comment

Reviewer: soreness, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
I have been on Sutent for 4 months. Renal Cell cancer. Have no taste buds, everything tastes like salt. Hands and feet are peeling, very hard to walk. the worst is a rash in groin area that turns into red bloody looking blisters. Sick to stomach, can't eat.

Comment:
I have been on Sutent for 4 months. Renal Cell cancer. Have no taste buds, everything tastes like salt. Hands and feet are peeling, very hard to walk. the worst is a rash in groin area that turns into red bloody looking blisters. Sick to stomach, can't eat.
Hide Full Comment