Reviewer: 55-64 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
i have had a couple of small brain tumors removed since taking sutent for renal cell caricoma

Comment:
i have had a couple of small brain tumors removed since taking sutent for renal cell caricoma
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Reviewer: Moto22, 45-54 Male on Treatment for less than 1 month (Caregiver)

Comment:
This drug killed my brother and proliferated his kidney cancer. He presented to hospital with fluid in the lung. Tests revealed kidney cancer with metastatic spot in lung. After less than three weeks on Sutent solid tumors had formed in the lung and chest wall. My brother lost all quality of life on this drug, he could barely walk through weakness caused by Sutent, his face swelled, basically he h ... Show Full Comment

Comment:
This drug killed my brother and proliferated his kidney cancer. He presented to hospital with fluid in the lung. Tests revealed kidney cancer with metastatic spot in lung. After less than three weeks on Sutent solid tumors had formed in the lung and chest wall. My brother lost all quality of life on this drug, he could barely walk through weakness caused by Sutent, his face swelled, basically he had all side effects. The oncologist did not explain fully what side effects may be serious, nor did he explain possible negative effects such as proliferation of cancer this drug can and does cause in many people. This drug was given to my brother and he was sent home to get on with it. No monitoring or contact from oncology department. My strong and well built brother survived only 2 months after taking this drug less than 3 weeks. He was not given proper information to enable him to make choices. People considering taking this drug tread very carefully, explore other options before going to this killer drug. In my opinion every cancer patient should automatically be given chemo sensitivity tests prior to treatment.
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Reviewer: kenk, 65-74 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
I had a radical right nephrectomy 24 years ago at the age of 41. I did not take any medication or receive any chemo following the removal of my kidney & the tumor. 5 years ago the cancer reappeared. I had a craniotomy to remove a tumor from my brain, kidney cancer. That was followed up with a PET scan which found I had Thyroid cancer, removed 6 months later & a spot on the middle lobe of ... Show Full Comment

Comment:
I had a radical right nephrectomy 24 years ago at the age of 41. I did not take any medication or receive any chemo following the removal of my kidney & the tumor. 5 years ago the cancer reappeared. I had a craniotomy to remove a tumor from my brain, kidney cancer. That was followed up with a PET scan which found I had Thyroid cancer, removed 6 months later & a spot on the middle lobe of my right lung which was removed 4 years ago. The spot on the lung was kidney cancer. At first my oncologist had me on Votrient. I took that for about a year. My oncologist then switched me to Sutent which I've been taking since spring 2014. I was taking 50 mg for 4 week on & 2 weeks off. The side effects (diarrhea mostly) were bothering me for about 3 of the 6 weeks. I've been on Sutent 37.5 mg, 3 weeks on & 1 week off and the diarrhea is a bit more tolerable but I still have it. It occurs mostly toward the end of my 3 weeks on but sometimes it occurs at other times in the 3 weeks I am taking Sutent. I had a PET scan last year and it was clear, so the surgeries I had several years ago along with the Sutent is keeping me alive. The brain MRIs have been clear as well. Thanks Sutent! The trade off is the discomfort of dealing with diarrhea for days at a time. I have also learned that there are certain foods I cannot eat while taking the Sutent. Greasy food are verboten! I am getting a little tired of having to deal with diarrhea but I suppose if Sutent keeps me cancer free I'll just deal with occasional diarrhea. I drink 6 oz of Kefir each morning and that seems to be helping my intestinal issues. Sutent works for me, no new lesions for going on 4 years now!
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Reviewer: Colonelmoe, 55-64 on Treatment for 1 to 6 months (Patient)

Comment:
I am a 64 rear old male. Had a radical nephrectomy removing the right kidney 1 Nov 2016. Went on Sutent Dec 2016 for 2 nodules in left lung. I've been on 50 mg 2 weeks on and one week off and have now been on it for 4 months. In the first 3 months the only side effects were a few sore knots on the bottom of my left foot and some intermittent fatigue. I never stopped working full time. The ... Show Full Comment

Comment:
I am a 64 rear old male. Had a radical nephrectomy removing the right kidney 1 Nov 2016. Went on Sutent Dec 2016 for 2 nodules in left lung. I've been on 50 mg 2 weeks on and one week off and have now been on it for 4 months. In the first 3 months the only side effects were a few sore knots on the bottom of my left foot and some intermittent fatigue. I never stopped working full time. The last month the fatigue has intensified and in the last week my blood pressure went from 115 over 70 to 140 over 70. Even stranger, my normal pulse of 70-75 went to 46-50. I have no dizziness or any other symptoms associated with the lowered pulse rate. In the last week the diarrhea started and gotten progressively worse. Per my physician I quit sutent until my appointment in 3 days. I will also have a scan at that time to determine the efficacy of the drug. Unless results are significant, I expect to request surgery to remove the lung cancer
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Reviewer: Valde21, 55-64 on Treatment for 1 to 6 months (Patient)

Comment:
60 yr old Male, 170 lbs. Radical nephrectomy (left kidney) done Dec 2015. 2 nodules in right lung. Started Sutent 3 and half months ago. 50 mgs. 2 weeks one week off. One nodule has shrunk to half its original size. Side effects include nausea, fatigue, itching of the skin and blisters in hands and in nostrils, blisters in mouth, diarrea, feeling cold even on a hot day, severe stomach acid, gas, ... Show Full Comment

Comment:
60 yr old Male, 170 lbs. Radical nephrectomy (left kidney) done Dec 2015. 2 nodules in right lung. Started Sutent 3 and half months ago. 50 mgs. 2 weeks one week off. One nodule has shrunk to half its original size. Side effects include nausea, fatigue, itching of the skin and blisters in hands and in nostrils, blisters in mouth, diarrea, feeling cold even on a hot day, severe stomach acid, gas, blotting, white hair (starting with eyebrows and beard) and minimal loss of hair. Some weeks I have some side effects, some weeks others. To handle side effects I take the medication right before going to bed so the nausea happens while I am in bed (sometimes I have to get up and vomit). For the acid, I stopped taking omeprazole b/c is reported to be bad for the kidney, so I use a grandmother's remedy: I take baking soda (one tsp solved in water) to fight the acid and the gas. Baking soda works like making a big bubble in your stomach but it neutralizes the acid: I feel much much better after a big burp. Baking soda has helped me throw up when I had a very upset stomach. Skin and blisters I treat with some vaseline or cream. For diarrea, I take every morning Benefiber, and it does wonders to make your stomach whole. I have to live with the gas. For fatigue, I exercise (at least I walk) as much as I can --I use to be able to swim a mile, now I do a third of a mile, but I feel great after the exercise, more energetic.
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