Reviewer: Cameron, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
I had my left Kidney removed last July (2008) and it was rated stage III/IV. Went on Sutent and could barely handle the side effects. A CT scan in January 09 showed RCC in the lymph nodes. A July CT scan showed the Sutent had stopped working and the spots were growing. Sutent was stopped. I started on Torisel on Sept 11th, 09. After 4 treatments, the rash/acne was so bad, (face, scalp, chest, a ... Show Full Comment

Comment:
I had my left Kidney removed last July (2008) and it was rated stage III/IV. Went on Sutent and could barely handle the side effects. A CT scan in January 09 showed RCC in the lymph nodes. A July CT scan showed the Sutent had stopped working and the spots were growing. Sutent was stopped. I started on Torisel on Sept 11th, 09. After 4 treatments, the rash/acne was so bad, (face, scalp, chest, and mouth/tongue)the fifth week was canceled to give me time to recover. Started 6th week at a slightly reduced dose and the acne came back but not in my mouth. The CT scan on October 16th showed a reduction in the lymph nodes. I have had 7 treatments so far, and I am on antibiotics to control the acne.
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Reviewer: lafrcf, 45-54 Female on Treatment for 1 to 6 months (Patient)

Comment:
Have had 7 t6reatments. First CT taken within days. Have chromophobe kidney cancer, mets to bones. Sutent side effects too difficult. Dropped that dose and eventually stopped working. Switched to Torisel. Bad skin rashes are only significant side effect; rest can be tolerated. God bless all and good luck.

Comment:
Have had 7 t6reatments. First CT taken within days. Have chromophobe kidney cancer, mets to bones. Sutent side effects too difficult. Dropped that dose and eventually stopped working. Switched to Torisel. Bad skin rashes are only significant side effect; rest can be tolerated. God bless all and good luck.
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Reviewer: roberjoel, 55-64 Male on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have now received 37 treatments. I haven't had any bad reactions but the taste change. Everything tastes bad! My cancer is still growing but slowly. I have renal cell carcinoma in 5 spots. I just finished radiation treatment for quality of life issues. Now I can walk again.

Comment:
I have now received 37 treatments. I haven't had any bad reactions but the taste change. Everything tastes bad! My cancer is still growing but slowly. I have renal cell carcinoma in 5 spots. I just finished radiation treatment for quality of life issues. Now I can walk again.
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Reviewer: Becca53, 55-64 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My fiance has been on Torisel 25 mg's since Jan. 11 2008, he has stage 4 mrcc, altho kidney removed in Nov. mets to both his lungs..He had 3, 25 mg's and then his borderline scans after his 3rd treatment he had 5-10% shrinkage after 3 doses.. He is due for his next catscan in 2-3 weeks and we'll see how those turn out...He has a a few problems with getting a very bad rash, but with a s ... Show Full Comment

Comment:
My fiance has been on Torisel 25 mg's since Jan. 11 2008, he has stage 4 mrcc, altho kidney removed in Nov. mets to both his lungs..He had 3, 25 mg's and then his borderline scans after his 3rd treatment he had 5-10% shrinkage after 3 doses.. He is due for his next catscan in 2-3 weeks and we'll see how those turn out...He has a a few problems with getting a very bad rash, but with a slight mg steriod, has only had to take a week off a month, and with the original bad rash came he had to take 3 weeks off, plus drop to 15 mg, for 2 weeks up to 20mg Monday back up to 25 mg's...I look at all the targeted drugs are hard and i'm not expecting to much shrinkage, but any shrinage is better than nothing or regrowth...So we are both very pleased with Torisel and a very understanding oncologist..It's helped up thru a very difficult time, making decision neither one of us thought we'd ever have to make....Thanks for reading...
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Reviewer: 55-64 Female (Patient)

Comment:
I have been taking Torisel weekly for 9 months. Side effects: change in taste, mouth sores, weight loss. Have had two CT scans since taking Torisel. Tumors in lungs, adrenal, & remaining kidney have stopped growing.I took Nexavar and Sutent but side effects were too much, even tho the drugs were effective in shrinking tumors.

Comment:
I have been taking Torisel weekly for 9 months. Side effects: change in taste, mouth sores, weight loss. Have had two CT scans since taking Torisel. Tumors in lungs, adrenal, & remaining kidney have stopped growing.I took Nexavar and Sutent but side effects were too much, even tho the drugs were effective in shrinking tumors.
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