Reviewer: JDB, 55-64 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My husband was diagnosed with Renal cell carcinoma with sarcomatoid featured Stage IV, on 4/22/13, after suffering a spontaneous tib/fib fracture of his right leg. Left kidney and surrounding tissues including left adrenal gland and lymph nodes and a tumor around the vena cava where removed 5/29/13. He was to start treatment with Torisel on July 8th. Sarcomatoid tumor came back in his right shin, ... Show Full Comment

Comment:
My husband was diagnosed with Renal cell carcinoma with sarcomatoid featured Stage IV, on 4/22/13, after suffering a spontaneous tib/fib fracture of his right leg. Left kidney and surrounding tissues including left adrenal gland and lymph nodes and a tumor around the vena cava where removed 5/29/13. He was to start treatment with Torisel on July 8th. Sarcomatoid tumor came back in his right shin, 7/5/13 right leg was removed above the knee, treatment was delayed in order for amputation to heal and to get a prostetic leg fitted. Torisel finally started in the 2nd week of September. We've had some problems with skin rash and mouth sores, but these responded well, biggest problem was pnuemanitis at week 12, had to skip a week. Torisel shrank the 3 small nodules in my husbands left lung. Slowed the growth of a tumor on the right adrenal gland and liver, at this time we decided to surgically remove these tumors, also removed a suspisious lymph node in his right groin. At this time 1/21/14 there is no detectable cancer in my husbands body. We are to restart treatment on 2/5/14, there has been some question as to possibly change his treatment, but after reading other comments I feel we should stick with the Torisel.
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Reviewer: toby, 45-54 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
Extensive skin lesions and pruritis

Comment:
Extensive skin lesions and pruritis
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Reviewer: rclj1, 55-64 Male on Treatment for 1 to 6 months (Caregiver)

Comment:
today was my wife's 14th treatment of torisel, and we are scheduled for our second ct/scan while on this drug. The first scan was promising after taking both sutent and nexavar with little positive results. Since she has been on torisel there have been Fatigue after each dose and a blood transfusing because of the effect of torisel reducing blood counts. Thankfully no mouth soars so far

Comment:
today was my wife's 14th treatment of torisel, and we are scheduled for our second ct/scan while on this drug. The first scan was promising after taking both sutent and nexavar with little positive results. Since she has been on torisel there have been Fatigue after each dose and a blood transfusing because of the effect of torisel reducing blood counts. Thankfully no mouth soars so far
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Reviewer: Kandy, 65-74 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
My husband has received weekly 25mg IV Torisel beginning Jan 18, 2010 for his mRCC. The one obvious tumor in his neck has decreased by 1/2 the original size. Main side effects: bitter taste, no appetite, moderate itching and rash (Sinequan given), elevated blood sugar, cholesteral, triglycerides, anemia. Today he was given an injection for the anemia. Does anyone know what it may have been? It wa ... Show Full Comment

Comment:
My husband has received weekly 25mg IV Torisel beginning Jan 18, 2010 for his mRCC. The one obvious tumor in his neck has decreased by 1/2 the original size. Main side effects: bitter taste, no appetite, moderate itching and rash (Sinequan given), elevated blood sugar, cholesteral, triglycerides, anemia. Today he was given an injection for the anemia. Does anyone know what it may have been? It was not Procrit. History: kidney removed 2000; part of 2nd kidney removed 2002; Thyroidectomy/mRCC 2009; Sutent 50mg/20 days 2009, bad side effects.
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Reviewer: Mamaflo, 55-64 Female on Treatment for 1 to less than 2 years (Caregiver)

Comment:
My husband (now 58) was diagnoised with advanced renal cell carcinoma in sept 2003. He has had a kidney and adrenal gland removed. He was initially put on Nexavar and was on it for a little more than 2 years (lots of side effects). He has now been on weekly infusions of Torisel for 13 months. During this period he has developed mets in his liver, spine, and ribs. He had some daily radation on the ... Show Full Comment

Comment:
My husband (now 58) was diagnoised with advanced renal cell carcinoma in sept 2003. He has had a kidney and adrenal gland removed. He was initially put on Nexavar and was on it for a little more than 2 years (lots of side effects). He has now been on weekly infusions of Torisel for 13 months. During this period he has developed mets in his liver, spine, and ribs. He had some daily radation on the spinal mets in addition to the torisel with amazing results. The mets in his rib and liver however continue to increase in size. His oncologist is optimistic though and wants to continue with the Torisel if possible. The major side effect he has experienced is swelling of his get/ankles. Keep believing this disease can be cured, there are new treatments developed annually.
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