Reviewer: Mom, 55-64 Female on Treatment for less than 1 month (Patient)

Comment:
I was diagnosed in 1995 and I am doing very well as to moving around, my significant complaint is nerve pain and weakness in my back and legs. My former Neurologist is a leader in his field. He said there are two types of people in relapsing and remitting MS, those with pain and those without. The without patient usually has more physical disability whereas the patient who has pain has less ph ... Show Full Comment

Comment:
I was diagnosed in 1995 and I am doing very well as to moving around, my significant complaint is nerve pain and weakness in my back and legs. My former Neurologist is a leader in his field. He said there are two types of people in relapsing and remitting MS, those with pain and those without. The without patient usually has more physical disability whereas the patient who has pain has less physical disability, but more increasing pain, I am one of those people. My current Neurologist wanted me to take Ampyra to improve my walking, since my gait was starting to worsen. I took one pill of Ampya, I started dropping both my feet, couldn't stand, and I was in worsening pain. I take a lot of medication for my nerve pain and it was manageable, but it seems that the Ampyra counteracted those drugs and increased my pain by 100%, it was a terrible drug for me. I would not take it again. I and my Neurologist both feel that because Ampyra opens the nerve path ways it is not a good drug for people with nerve pain.
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Reviewer: 55-64 Female (Patient)

Comment:
Before taking ampyra, I couldn't walk without using a cane or walker. I also had a problem with fatigue. I had an opportunity to do a clinical trial and in the beginning doing a 6-minute walk I had walkeed 530 feet. Two weeks later doing a 6-muinute walk I did 750 feet. I FEEL SO MUCH FREER NOW AND I LOVE IT.

Comment:
Before taking ampyra, I couldn't walk without using a cane or walker. I also had a problem with fatigue. I had an opportunity to do a clinical trial and in the beginning doing a 6-minute walk I had walkeed 530 feet. Two weeks later doing a 6-muinute walk I did 750 feet. I FEEL SO MUCH FREER NOW AND I LOVE IT.
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Reviewer: Fuso, 45-54 Male on Treatment for 1 to 6 months (Patient)

Comment:
About a year ago I was feeling great about how I was handling my MS. I had lost some functions over the previous 7 years since onset, such as the ability to run, but I was still able to bike and hike long distances and on steep climbs. At my neurologist's prompting, I started taking Ampyra, thinking I could only get better. At first, it seemed to help slightly with my gait, but it also brought ... Show Full Comment

Comment:
About a year ago I was feeling great about how I was handling my MS. I had lost some functions over the previous 7 years since onset, such as the ability to run, but I was still able to bike and hike long distances and on steep climbs. At my neurologist's prompting, I started taking Ampyra, thinking I could only get better. At first, it seemed to help slightly with my gait, but it also brought on more tingling and spasticity and even seemed to make me more wobbly. My neurologist said that the sensations were probably part of the healing process, so I stuck with it for three months. During that time the symptoms continued, and then I got the warned-about side-effect—a urinary tract infection. I stopped taking Ampyra. Since then, I've been on a very gradual decline with increased spasticity, fatigue, tingling, patches of numbness, another UTI—and yet my MRI's have shown no new lesions. I have a different neurologist now, who has no explanation for why I'm feeling significantly worse. I can't say with 100% certainty that Ampyra brought about my decline, but it seems to have played a part. I've read posts about Ampyra on many forums, and it appears to have very inconsistent effects on people. According to studies, only about 30% of the people who take it see an improvement in their physical functions. So be aware that if you give Ampyra a try, you may be taking a gamble with lasting effects.
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Reviewer: Jim S, 55-64 Male on Treatment for 1 to less than 2 years (Patient)

Comment:
Been on this drug for about a year and can't see any improvement of MS symptoms. I have experienced few, if any, side-effects...maybe some dizziness. Am only staying with it for now because there is nothing else and it may be having some minor benefit that I'm not detecting.

Comment:
Been on this drug for about a year and can't see any improvement of MS symptoms. I have experienced few, if any, side-effects...maybe some dizziness. Am only staying with it for now because there is nothing else and it may be having some minor benefit that I'm not detecting.
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Reviewer: 45-54 Male on Treatment for less than 1 month (Patient)

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