Reviewer: GHFan, 35-44 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed with Pseudotumor Cererbi in Nov 2009. I went to the eye DR for a flashing in my left eye and went from there. My eye test at that time was great 20/20 so no vision issues at that time. I went to see the neuro opthamologist and he did few test including a field vision test and my vision was fine but the fluid was bad in the left eye(flashing eye) and moderate in the right. In D ... Show Full Comment

Comment:
I was diagnosed with Pseudotumor Cererbi in Nov 2009. I went to the eye DR for a flashing in my left eye and went from there. My eye test at that time was great 20/20 so no vision issues at that time. I went to see the neuro opthamologist and he did few test including a field vision test and my vision was fine but the fluid was bad in the left eye(flashing eye) and moderate in the right. In Dec to check the pressure I had a spinal tap which also helped with the pressure and I started the medication right after that. I started taking Diamox 1 a day 250MG for a week uping the dosage each week until within a month I got to 4 a day. I took 4 a day until March when I went for a follow up and the fluid was WAY down. He dropped me to 3 a day then and this past Friday May 21 I went back and it is WAY down again I am down to 2 a day. The tingling was bad at first but almost totally stopped, ANY carbonated drinks taste HORRIBLE which is OK since I should not be drinking soda anyway. I do feel fatigued late in the afternoon which is also a side effect. My Neuro Opthamologist has said that I am very responsive to this medication, I have a follow up in August and may be able to totally come off the meds. For me any small issues like tingling are not really any issue when faced with possible going blind. This medication really really worked for me.
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Reviewer: BeantownChick617, 19-24 Female on Treatment for 1 to 6 months (Patient)

Comment:
I have been taking Diamox for a month now, and my headaches are all gone. At first I did have tingling in fingers and toes, but that went away. I am taking the long lasting capusal 500gm 2x a day, and at first it was hard for me to rememeber to take them, but I just set my alarm clock for the times I need to take them. I am peeing more, and I do have cotton mouth, but it is helping me lose weight ... Show Full Comment

Comment:
I have been taking Diamox for a month now, and my headaches are all gone. At first I did have tingling in fingers and toes, but that went away. I am taking the long lasting capusal 500gm 2x a day, and at first it was hard for me to rememeber to take them, but I just set my alarm clock for the times I need to take them. I am peeing more, and I do have cotton mouth, but it is helping me lose weight at the same time.
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Reviewer: kelli_chrysler, 19-24 Female on Treatment for less than 1 month (Patient)

Comment:
I have been on the Diamox for about a month now, I am taking 250mg 3x a day. So far the medication has worked for me. I still get the occasional headache here and there, but so far they are manageable. The only side effects I have had are loss of appetite, tingling in my fingers and toes, and I cannot drink ANY carbonated beverage, they taste awful. My primary Dr. said to cut the pill in half, so ... Show Full Comment

Comment:
I have been on the Diamox for about a month now, I am taking 250mg 3x a day. So far the medication has worked for me. I still get the occasional headache here and there, but so far they are manageable. The only side effects I have had are loss of appetite, tingling in my fingers and toes, and I cannot drink ANY carbonated beverage, they taste awful. My primary Dr. said to cut the pill in half, so I'm trying that starting today,to see if that helps at all.
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Reviewer: aglass, 19-24 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was on this medication when i was first diagnosed. It was not effective, I was losing my vision and I ended up getting a shunt. I had my first shunt put in 2 yrs ago that shunt malfunctioned so I got another one and now the second shunt which was installed over a year ago doesnt seem to be working completely because i recently began getting the horrible headaches again where I think my head is g ... Show Full Comment

Comment:
I was on this medication when i was first diagnosed. It was not effective, I was losing my vision and I ended up getting a shunt. I had my first shunt put in 2 yrs ago that shunt malfunctioned so I got another one and now the second shunt which was installed over a year ago doesnt seem to be working completely because i recently began getting the horrible headaches again where I think my head is going to explode. my doctor put me back on diamox for the time being. It seems to work in combonation with the shunt. i do have the horrible side effects of tingling in my hands and feet, fatigue(I could sleep all day), change in taste especially with soda, decreased appetite (I have lost 12 lbs in 2 weeks). If you can deal with the side effects this medication does seem to work. My headaches are still present but less frequent and less intense. My vision is doing much better. Each person will have their own side effects so it is important to follow your doctors orders and report side effects if they occur.
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Reviewer: 25-34 Female on Treatment for less than 1 month (Patient)

Comment:
the meds make my mouth very very dry no matter how much i drink or when.

Comment:
the meds make my mouth very very dry no matter how much i drink or when.
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