Reviewer: sarak2011, 13-18 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I am 17 years old and have been taking this medicine for a little over a year now after I was diagnoist with Pseudotumor Cerebri, which was caused from an alergic reaction to an achne medicine. The good thing about this medicine has been the weight loss...hard to believe looking back that I was once 50 pounds heavier. The down side has been the annoying "pins and needles" all over the bo ... Show Full Comment

Comment:
I am 17 years old and have been taking this medicine for a little over a year now after I was diagnoist with Pseudotumor Cerebri, which was caused from an alergic reaction to an achne medicine. The good thing about this medicine has been the weight loss...hard to believe looking back that I was once 50 pounds heavier. The down side has been the annoying "pins and needles" all over the body, loss of intrest of the thought of food, and the annoyance of having to be tied down to the meds. The meds have done wonders though to say the least, but apon a recent appointment, I found out that prolonged use of the medicine can infact cause more headaches. If you are still experiencing headaches that may be something to consult your doctor about. Good luck to all of you out there, I know exactly what you're going through! It is frustrating to no end but it can and will get better.
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Reviewer: webmd, 13-18 Female on Treatment for 1 to 6 months (Caregiver)

Comment:
MY 14YO DAUGHTER HAD BEEN HAVING HA X 4MONTHS DR. SAID HA RELATED TO HER CYCLE SHE BECAME CROSS EYED AND I TOOK HER TO OPTH.AND SHE WAS HOSPITALIZED WITH PSEUDOTUMOR CEREBRI NEURO DIDN'T HAVE A GOOD ANSWER SHE WAS ON DIAMOX TABLETS NOT EFFECTIVE AT ALL IM DOING MY RESEARCH AND FOUND OUT SHE WOULD DO BETTER ON THE CAPSULES WHICH IS VERY EXPENSIVE SHE IS DOING BETTER BUT STILL HAVING BLURRED VIS ... Show Full Comment

Comment:
MY 14YO DAUGHTER HAD BEEN HAVING HA X 4MONTHS DR. SAID HA RELATED TO HER CYCLE SHE BECAME CROSS EYED AND I TOOK HER TO OPTH.AND SHE WAS HOSPITALIZED WITH PSEUDOTUMOR CEREBRI NEURO DIDN'T HAVE A GOOD ANSWER SHE WAS ON DIAMOX TABLETS NOT EFFECTIVE AT ALL IM DOING MY RESEARCH AND FOUND OUT SHE WOULD DO BETTER ON THE CAPSULES WHICH IS VERY EXPENSIVE SHE IS DOING BETTER BUT STILL HAVING BLURRED VISION NECK AND HA CURRENLTY TAKING TID AND HAS HAD TWO LP WITH OPENING PRESSURE OF 24 THE SIDE EFFECTS ARE TERRIBLE BUT I KNOW THIS IS THE ONLY MEDICINE AVAILABLE.PLEASE HELP WHAT DO YOU THINK PHONE#4044847237
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Reviewer: bengberg, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
Pins & needles, food/drinks taste nasty. One thing that a lot of the write ups from the pharmacy's is that they don't tell you to stay out of sunlight. I didn't know and I got severly burned from it. This was a few years ago but just be careful.

Comment:
Pins & needles, food/drinks taste nasty. One thing that a lot of the write ups from the pharmacy's is that they don't tell you to stay out of sunlight. I didn't know and I got severly burned from it. This was a few years ago but just be careful.
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Reviewer: md2003, 25-34 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I've been on the generic for Diamox for 1 yr now and have been pretty satisfied with the outcome so far. My side effects have been: pins and needles, dizziness, and fatigue, which at times can be frustrating. It has helped the pressure though. Be sure to drink orange juice or something like that everyday though.

Comment:
I've been on the generic for Diamox for 1 yr now and have been pretty satisfied with the outcome so far. My side effects have been: pins and needles, dizziness, and fatigue, which at times can be frustrating. It has helped the pressure though. Be sure to drink orange juice or something like that everyday though.
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Reviewer: katie, 25-34 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed in june of 09 put on topamax 150mg 2x a day, 1000mg of diamox 2x a day, 75mg of imiprimine at bedtime and still no relief. I've lost 15 lbs and that has not helped either. vision keeps worsening, i can't put my head down, side effects from all the drugs make me crazy, but i can get out of bed in the morning without them i cant even do that so i guess it's a toss up! I ... Show Full Comment

Comment:
I was diagnosed in june of 09 put on topamax 150mg 2x a day, 1000mg of diamox 2x a day, 75mg of imiprimine at bedtime and still no relief. I've lost 15 lbs and that has not helped either. vision keeps worsening, i can't put my head down, side effects from all the drugs make me crazy, but i can get out of bed in the morning without them i cant even do that so i guess it's a toss up! I used to be able to go to excersize classes and run with my kids and walk miles and hike and now i can't barely walk up a flight of stairs im so weak. I've lost 20%color and peripheal vision and have decreased motor function on my right side. my neurologist says its because i was 25lbs overweight but there are so many other reasons it could be i'm not so quick to belive them all when they say that it is caused by weight. Do your homework first look up ideopathic intercranial hypertension which is what the preferred name is and you will find much more documentation on the subject.
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